Ehlers Danlos

Is it easy to find a partner and/or maintain relationship when you have Ehlers Danlos?

People with experience in Ehlers Danlos give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Ehlers Danlos. What are the possible difficulties in having a relationship?

Is it easy to find a partner and/or maintain a relationship when you have Ehlers Danlos?

Living with Ehlers Danlos Syndrome (EDS) can present unique challenges when it comes to finding and maintaining a romantic relationship. EDS is a connective tissue disorder that affects the joints, skin, and blood vessels, leading to chronic pain, fatigue, and other symptoms. While these challenges may make it more difficult to navigate relationships, it is important to remember that everyone's experience is different, and finding a partner who understands and supports you is possible.

Challenges in finding a partner:

When living with EDS, it can be challenging to find a partner who understands the condition and its impact on daily life. Many people may not be familiar with EDS or may have misconceptions about it. This lack of awareness can make it difficult to find someone who is willing to learn and adapt to the unique needs and limitations that EDS presents.

Additionally, the physical symptoms of EDS, such as chronic pain and fatigue, can make it harder to engage in social activities and meet new people. This can limit opportunities to connect with potential partners.

Building a strong relationship:

While finding a partner who understands EDS may be challenging, it is not impossible. Building a strong relationship requires open communication, empathy, and understanding from both partners.

It is important to have honest conversations about your condition early on in the relationship. This allows your partner to gain a better understanding of EDS and its impact on your life. Sharing information about your symptoms, limitations, and any accommodations you may need can help set realistic expectations and foster a supportive environment.

Empathy plays a crucial role in maintaining a relationship when living with EDS. Your partner should be willing to listen, validate your experiences, and offer support when needed. They should understand that your symptoms may fluctuate and be flexible in adapting plans or activities to accommodate your needs.

Supporting each other:

Both partners should actively support each other's physical and emotional well-being. This may involve attending medical appointments together, researching and learning about EDS as a team, and advocating for each other's needs.

It is also important to find a balance between supporting each other and maintaining independence. While EDS may require additional support, it is essential to foster a sense of individuality and personal growth within the relationship.

Seeking a supportive community:

Connecting with others who have EDS or chronic illnesses can provide a sense of belonging and understanding. Online support groups, local meetups, or EDS-specific events can be great opportunities to meet people who share similar experiences. These communities can offer valuable advice, support, and friendship.

Conclusion:

While finding a partner and maintaining a relationship when living with Ehlers Danlos Syndrome may present unique challenges, it is certainly possible. Open communication, empathy, and understanding are key in building a strong and supportive relationship. Seeking out a supportive community can also provide additional resources and connections. Remember, everyone's journey is different, and with patience and perseverance, you can find a partner who loves and supports you for who you are.

by Diseasemaps

Unless you find someone who is really willing to get through all of the pain and all of the problems that might arise, you're going to have some troubles. I am in a relationship for 4 years now. We began dating before I was diagnosed but way after I started having pain and joint problems. One of the major difficulties is getting him to understand how in some days I feel like absolute sh*t, all of my joints hurt and I cannot give another step. How I can't stand for very long or ow I need to sit every so often. When you're looking for a partner, try to be honest. I think no one likes to be dating someone and then only discovering what their life really is.

5/25/17 by Maria 2051

I don't think eds stops you from meeting a partner. My partner is really helpful and caring. It is an undertaking though, caring for someone. So it's best to be open with a potential partner about eds

5/27/17 by Jude 2050

That depends on how bad you feel. Those with heavy pain and limitations have a hard time but not so with those with milder forms. Unfortunately, the rate of divorce is higher among eds patients because chronic pain is difficult for the spouse and "firms better or worse is harder than they thought".

5/28/17 by Celi 2000

Yes. And no. EDS does not define you, it is just a part of your overall makeup. If you can learn ways to cope with your symptoms that allow you to maintain a social life (because really, how are you going to meet people if you never get out), it's entirely possible. I've personally never felt like I've had to "settle" when it comes to men and I have brutally high standards. Take care of yourself first and your increasing wellness will bring the good people into your life if you truly "live" it. Oh. And stay off of EDS support Facebook groups. Those are the people who are going to die alone! Misery loves company and they all hang out there!

5/31/17 by KathrynOConnor 2200

If you can find a super understanding partner it is very easy to find love or even a common relationship with someone.

9/27/17 by Lbond94 4100

Yes I am married and have been for 7 years

10/6/17 by Sasha 2050

Yes as long as they are understanding

10/7/17 by Sharon 7050

Be comfortable with it yourself before entering into relationships. As with all conditions/diseases/afflictions, there will be setbacks and roadblocks but that shouldn't deter anyone from establishing a healthy social life. Be yourself, be honest, be realistic, you can set goals but not expectations. Communication is key, always be kind.

10/25/17 by Dolores 3050

It depends on you and the partner! A partner who's understanding of your limits and needs is the main thing, just like for any other relationship. The last person I dated was very eager to learn and understand EDS, and he was quick to help me but he also respected when I said I didn't need help.

1/14/18 by stairphobe 3070

Ehlers Danlos does not affect the way you can have relationships

9/29/19 by Amy 13500

I think as an invisible illness, its easy enough to find a partner. In the long term you need to make sure the person you're with believes you about your illness and understands your limitations.

5/12/20 by Alex 3551

Yes but it can be very trying on the other partner that does not have it depending on which type that you have and if you have other conditions along with ehlers-danlos syndrome

11/19/21 by NuNu 2550

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