Ehlers Danlos diet. Is there a diet which improves the quality of life of people with Ehlers Danlos?

There is no known diet to avoid with EDS, although some have said they feel better after eating clean.

4/11/17 by Montana 1670

Diet does not affect EDS, but there are diets that help certain secondary conditions, like MCAS or gastroparesis.

5/10/17 by stairphobe 3070

Not really, no. It really depends on the type and what diseases they have. EDS is a syndrome that may cause other diseases. There are EDSers that are allergic to gluten, to lactose, to dairy, etc, etc. It depends on each person. There are EDSers who get extremely bloated when they eat gluten, or eat kiwi, or bananas. Each person has to adjust their diet to their problems and try to use different diets to see if you are allergic or react badly to some food/medicine etc

5/25/17 by Maria 2051

Many people use the Cusack Protocol for supplementation. I am vegetarian and gluten free which greatly has helped my symptoms. Diet should be discussed with a nutritionist who is knowledgeable in EDS

5/26/17 by Stephanie 800

No easy fix in a diet. Eat healthy to prevent putting oon to much weight stressing your joints

5/27/17 by Jude 2050

I have read sticking to a anti-inflammatory diet helps decrease symptoms.I typically stick to a gluten free one.

5/27/17 by Ashley 950

There is no known diet proven to help with eds as it's a genetic disease that gives us defective connective tissue

5/28/17 by Celi 2000

A diet that lowers overall inflammation in the body can help with pain and digestive issues common in EDS. The Autoimmune Protocol (AIP) is the best known.

5/31/17 by KathrynOConnor 2200

No

6/4/17 by Richelle 1750

No there is no diet that helps with EDS or the effects from it

9/27/17 by Lbond94 4100

I haven't found a diet that improves our health

10/6/17 by Sasha 2050

None that have found to work

10/7/17 by Sharon 7050

Again, every person is unique. For me, with my specific genes, avoiding soy, processed, high histamine and spicy foods, supplementing magnesium and salt, eating several smaller portioned meals and staying well hydrated have helped.

10/25/17 by Dolores 3050

Not a diet but a way of eating should happen. Any foods that oxygenate the blood, reduce sugar and if you can cut out all unnatural sugars, if it is white, don't eat it, if wheat and barley and dairy affect your gut, don't eat them or eat them in small quantities, increase your intake of natural foods that are green, orange, red, Vitamin A, C, D, B6, and Magnesium are all important and iron..... all should first come from natural sources. If defficient in any (find out) and use natural sources recomended by a nutritionist or dietician with knowledge of Autonomic Dysfunction and GI issues typical of EDS'ers. High histamine foods are probably not a good idea and all processed is not a good idea. Keep it simple no white high colour processed is out alcohol is out reduce histamine foods and any foods that you react to negatively keep meals small fully digest from start to finish (meaning chew your food thouroughly as this is the start of the digestive process) Keep meals small and increase your gut flora , especially when taking antibiotics Become conscious of what your body tells you when you put something in your mouth. If you react negatively (and this can be days later) then remove that food or do a trial and error with it. Eat simply, grow your own if you can, flavour foods with herbs and spices. learn to cook, and dessert is not necessary, eat 6 to 8 times a day instead of three meals and snacks. Protein Protein Protein Potassium Potassium Potassium Can't stress enough that these are vitally important in the way you eat - your muscles depend on it You do not necessarily have to eat meat to get protein either. It takes time to convert your kitchen and pantry to a 'way of eating' . Once it is converted and it can take 6 months to do this, the 'extra' expense is not extra and can actually be cheaper than the quick and easy. Plan and take the time to fuel your body properly. Listen to your bodies signals, and learn to love what nature provides to us.

5/11/18 by Izzy 600

Si .llevar una dieta saludable ayuda.hay q evitar los dulces y las harinas

7/6/18 by Estefania 1150

We have found avoiding preservatives, additives of any kind including vitamins and supplements to food, dyes, etc my daughter does much better. When we travel, she fairs much better overseas.

3/21/19 by pianocat_61 1400

There is not a known effective diet and collagen supplements do not do anything

9/29/19 by Amy 13500

EDS can come with some gastrointestinal issues. I myself get heartburn when I'm stressed or from very acidic food like tomato based dishes. If it upsets your stomach, consider avoiding it. Many people with EDS also have POTS, and should make sure they're getting enough salt.

5/12/20 by Alex 3551

Paleo or vegan I keep Keto

11/19/21 by NuNu 2550

Diets may help however there is no one set

11/28/22 by Taiy rinaldi-bull 600

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It depends on each person, to my touch a diet high in fiber, low in sugar and without a lot of flour

3/25/17 by Paula Lopez. Translated

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A lot of Sed also suffer from a syndrome of activation mastocitaire. so in effect a special diet can be adapted. Personally a stop of dairy products and a decrease of the gluten has allowed me a better transit

8/16/17 by Apolline. Translated

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Unfortunately not. There are, however, to avoid foods potentially "inflammatory" (see google)

8/17/17 by Sandrine. Translated

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The sed is not controllable like diabetes or other. Food-based vitamins C and omega can be a good alternative to overcome the fatigue and some disorders of neurotransmission. Given the digestive problems, I think that a simple balanced and varied diet is enough. Of course, the sedentary lifestyle is more common, therefore, limit the fat and sugar in big amount.

8/30/17 by Ehos. Translated

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I think not. By the fact you need greater stability to the muscle to give more support to the joints. We advise a regular intake of proteins and healthy foods. To not let other diseases settle in the body.

8/30/17 by Kayla Rarine. Translated