Ehlers Danlos

What is the prevalence of Ehlers Danlos?

How many people does Ehlers Danlos affect? Does it have the same prevalence in men and women? And in the different countries?

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. It is estimated that EDS affects approximately 1 in every 5,000 to 20,000 individuals worldwide, making it a relatively rare condition.

There are several subtypes of EDS, each with its own prevalence rate. The most common subtype, known as hypermobile EDS (hEDS), is estimated to affect around 1 in every 5,000 individuals. Other subtypes, such as classical EDS (cEDS) and vascular EDS (vEDS), are much rarer, with prevalence rates of approximately 1 in every 20,000 to 40,000 individuals.

It is important to note that due to the variability in symptoms and the underdiagnosis of EDS, the true prevalence may be higher than currently reported. EDS can affect individuals of any gender, race, or age group.

Early diagnosis and proper management are crucial in improving the quality of life for individuals with EDS. If you suspect you or someone you know may have EDS, it is recommended to consult with a healthcare professional who can provide a comprehensive evaluation and appropriate care.

by Diseasemaps

The last data say 1 in 5,000 but probably way more. What happens is that this is a syndrome that not many doctors know about. So this means that even if there are more people who have it, their doctors won't know what it is and they will live undiagnosed. Supposedly it affects more women but that might be because statistically women complain more about their pain than man. My mother and my grandmother were diagnosed because I started doing research on my problems and discovered EDS.

5/25/17 by Maria 2051

Eds is more common among women although it is not rare for men to have it to. A lot of people are hypermobile with no pain and problems. The prevalence is 1 in 5000 i think

5/27/17 by Jude 2050

Each type is different. Typically all EDS is RARE although some think it's not as rare as originally thought but falsely diagnosed as fibromyalgia

5/28/17 by Celi 2000

The hypermobility and classical forms are most common; the hypermobility type may affect as many as 1 in 10,000 to 15,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are very rare.

5/31/17 by KathrynOConnor 2200

EDS affects men and women both equally but unfortunately it tends to show more effects on women because of our hormonal build

9/27/17 by Lbond94 4100

It is suppsably pretty rare but we believe it's just not diagnosed properly a lot of the time

10/6/17 by Sasha 2050

1.5 million people world wide

10/7/17 by Sharon 7050

Older EDS information prevalence is said to be 1/10,000 to 1/25,000 with approximately 20,000 to 50,000 in the US alone. Recent epidemiology says it's closer to 1/5,000 with 1.5 million cases reported Worldwide. Diagnosis is difficult due to the fact that children are naturally more flexible, and men are less likely to seek medical assistance than females. Age and the natural aging process contributes to increased diagnosis later in life.

10/25/17 by Dolores 3050

All types of EDS combined are estimated to occur in 1 in 5000 people. There are fewer than 200000 cases in the US per year.

1/14/18 by stairphobe 3070

Eds is 1 in 5,000 but doctors believe that it is underdiagnosed

9/29/19 by Amy 13500

At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. Recent clinical experience suggests that Ehlers-Danlos syndrome may be more common. The conditions are known to affect both males and females of all racial and ethnic backgrounds.

3/11/20 by MegTheMariner 1870

1/5000 people have hypermobile EDS, with other subtypes being much rarer.

5/12/20 by Alex 3551

Sorry I don't have any information about that

11/19/21 by NuNu 2550

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