Ehlers Danlos

Ehlers Danlos prognosis

What is the prognosis if you have Ehlers Danlos? Quality of life, limitations and expectatios of someone with Ehlers Danlos.

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. These tissues provide support and structure to various organs, joints, and blood vessels. EDS is characterized by a defect in the production, processing, or structure of collagen, which is a key component of connective tissues.

The prognosis for individuals with EDS can vary widely depending on the specific type and severity of the condition. There are several subtypes of EDS, each with its own unique features and complications. Some forms of EDS, such as the vascular type, can be life-threatening due to the increased risk of organ and blood vessel rupture.

Early diagnosis and appropriate management are crucial in improving the prognosis for individuals with EDS. While there is currently no cure for EDS, treatment focuses on managing symptoms, preventing complications, and improving quality of life.

Medical interventions may include physical therapy to strengthen muscles and improve joint stability, pain management strategies, and orthopedic interventions to address joint dislocations or instability. In some cases, surgical interventions may be necessary to repair or stabilize affected joints or blood vessels.

Lifestyle modifications can also play a significant role in managing EDS. This may involve avoiding activities that put excessive strain on the joints, maintaining a healthy weight, and practicing good posture and body mechanics. Additionally, individuals with EDS may benefit from assistive devices such as braces or splints to support weakened joints.

Regular monitoring and follow-up with healthcare professionals specializing in EDS is essential to detect and address any potential complications early on. Genetic counseling may also be recommended for individuals with EDS and their families to understand the inheritance pattern and assess the risk of passing the condition to future generations.

While EDS can present significant challenges, with proper management and support, individuals with the condition can lead fulfilling lives. It is important to consult with healthcare professionals for personalized advice and guidance based on the specific subtype and severity of EDS.

by Diseasemaps

People with EDS generally have a normal life expectancy, except for vascular EDS (which is around 48 years). People with EDS can become quite severely disabled or they can be virtually asymptomatic.

1/14/18 by stairphobe 3070

Abraham Lincoln us President not 100% proof, but the Doctor's says that is a very good chance of he hadde Ehlers-Danlos Syndrom.

5/28/18 by T_T_T© 100

It depends on the type of Ehlers Danlos that you have

9/29/19 by Amy 13500

The prognosis depends on the type of Ehlers-Danlos syndrome and the individual. Life expectancy can be shortened for those with the Vascular Ehlers-Danlos syndrome due to the possibility of organ and vessel rupture. Life expectancy is usually not affected in the other types. There can be a wide or narrow range of severity within a family, but each person’s case of Ehlers-Danlos syndrome will be unique. While there is no cure for the Ehlers-Danlos syndromes, there is treatment for symptoms, and there are preventative measures that are helpful for most. Answer is from the Ehlers-Danlos Society’s website.

3/11/20 by MegTheMariner 1870

EDS is degenerative. How severe and how quickly varies based on genetics and how you treat your joints. My joints have gotten more painful and weaker as time goes on. There is no reason for me to expect this to improve, but I can try to avoid overextending myself and making it worse faster.

5/12/20 by Alex 3551

On the website you medicine health.com they say patients with a classical and hypermobility forms of ehlers-danlos Syndrome have a normal life expectancy about 80% of patients with vascular ehlers-danlos syndrome will experience a major health event by age 40 in the life expectancy is shortened with an average age of death of 48 years I also found an answer to this question what is the prognosis of EDS say people affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40 the lifespan of people with the kyphoscoliosis form is also decreased largely due to the vascular involvement in the potential for restrictive lung disease

11/19/21 by NuNu 2550

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