> Esophageal Atresia > Stories

EA/TEF Parent

Our daughter was born with EA/TEF, Type C, short gap in May 2015. Our journey since has been a roller coaster. She has had several strictures, complications from G tube placement which resulted in emergency life-saving surgery, and has also received several "preventative" dilations with kenalog to help scar tissue from forming. She also continues to struggle to gain weight and has gross motor development delays. Through it all, though, she continues to be a happy little girl.

World map of Esophageal Atresia


Find people with Esophageal Atresia through the map. Connect with them and share experiences. Join the Esophageal Atresia community.