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GM1 Gangliosidosis stories
http://gm-123.org/ Eli was born in March 2009, and progressed pretty normally until about age 18 months. He will be 7 years old in March 2016. At age 2 his development began to slow and gradually regressed. He is currently 6 years old and can no...
Views: 614 Feb 10, 2016, 4:19 PM by Eli
The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure for GM1 Gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children. GM1 is a progressive and degene...
Views: 553 Jan 5, 2016, 10:00 AM by Iris
Views: 515 Jul 31, 2018, 11:57 PM by Johnny
My son is 26 years old, his name is Eric.
He was diagnosed at age 12. He can no longer speak or walk and wears diapers.
We have been fighting GM1 TYPE II for 26 years and it is devastating.
Views: 432 Feb 11, 2016, 6:01 AM by Arlene
Views: 238 Mar 16, 2018, 9:52 PM by Paul
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