IP has changed our lives
I am middle affected by IP, but one of my daughters -Amma(2 years old) is severe affected by this genetic condition. She has neurological issues, antenatal strokes and a blood cerebral stroke on the 2 nd day of life. Now she is CP , quad tetraparesis and she had infantile spasms. The recent MRI shoes A MOTOR AREA AFFECTED ( IN THE RIGHT) AND AN EPILEPTICAL FOCAR IN THE OCCPITAL AREA.
She gets rehabilitation therapies.
Find people with Incontinentia Pigmenti through the map. Connect with them and share experiences. Join the Incontinentia Pigmenti community.