Living with Interstitial Cystitis. How to live with Interstitial Cystitis?

Can you be happy living with Interstitial Cystitis? What do you have to do to be happy with Interstitial Cystitis? Living with Interstitial Cystitis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Interstitial Cystitis


Living with Interstitial Cystitis


Interstitial Cystitis (IC), also known as painful bladder syndrome, is a chronic condition that affects the bladder and surrounding pelvic region. It can cause discomfort, pain, and frequent urination, significantly impacting the quality of life. While there is no cure for IC, there are several strategies and lifestyle changes that can help manage the symptoms and improve daily living.



1. Seek Medical Guidance


If you suspect you have IC or have been diagnosed with it, it is crucial to consult with a healthcare professional who specializes in urology or pelvic pain. They can provide an accurate diagnosis, rule out other conditions, and guide you through appropriate treatment options.



2. Follow a Bladder-Friendly Diet


Many individuals with IC find that certain foods and beverages can trigger or worsen their symptoms. While triggers can vary from person to person, some common culprits include caffeine, alcohol, spicy foods, artificial sweeteners, and acidic foods. Keeping a food diary can help identify personal triggers, allowing you to make informed dietary choices.



3. Stay Hydrated


Although it may seem counterintuitive, drinking enough water is essential for managing IC. While it may increase the frequency of urination, it helps dilute the urine, reducing irritation to the bladder lining. Aim to drink enough water throughout the day, but be mindful of your fluid intake before bedtime to minimize nighttime disruptions.



4. Manage Stress


Stress can exacerbate IC symptoms, so it's important to find healthy ways to manage and reduce stress levels. Engaging in relaxation techniques such as deep breathing exercises, meditation, yoga, or engaging in hobbies can help alleviate stress and promote overall well-being.



5. Practice Pelvic Floor Physical Therapy


Pelvic floor physical therapy can be beneficial for individuals with IC. These specialized exercises help strengthen and relax the muscles in the pelvic region, reducing pain and improving bladder control. Working with a trained physical therapist can provide personalized guidance and exercises tailored to your specific needs.



6. Use Heat or Cold Therapy


Applying heat or cold to the pelvic area can provide temporary relief from IC symptoms. Experiment with both heat packs and cold packs to determine which works best for you. Some individuals find alternating between the two to be particularly helpful in managing pain and discomfort.



7. Explore Medication Options


There are various medications available to help manage IC symptoms. Your healthcare provider may prescribe oral medications, such as pain relievers or medications that help calm the bladder. In some cases, bladder instillations, where medication is directly inserted into the bladder, may be recommended. Discuss the potential benefits and side effects of medications with your healthcare provider to find the most suitable option for you.



8. Engage in Gentle Exercise


Regular exercise can help improve overall well-being and manage IC symptoms. However, it's important to choose low-impact activities that won't put excessive strain on the pelvic region. Walking, swimming, and gentle stretching are excellent options to consider. Start slowly and gradually increase your activity level to avoid overexertion.



9. Support Groups and Counseling


Living with IC can be challenging, both physically and emotionally. Connecting with others who share similar experiences can provide valuable support and understanding. Consider joining support groups, either in-person or online, where you can share your journey, gain insights, and learn coping strategies. Additionally, individual counseling or therapy can help you navigate the emotional aspects of living with a chronic condition.



10. Educate Yourself


Empower yourself by learning more about IC. Understanding the condition, its triggers, and available treatment options can help you make informed decisions and actively participate in your own care. Stay up-to-date with the latest research and developments in IC management to explore new possibilities for symptom relief.



Remember, living with IC requires patience and self-care. Each person's experience with IC is unique, so it's essential to find a management plan that works best for you. With the right strategies and support, it is possible to lead a fulfilling life while effectively managing IC symptoms.


by Diseasemaps

IC is beyond difficult. It is your constant companion. I give it a name and a face. I lean into it. Some days I curse it. Other days I embrace it. It requires a lot of rest. A lot of clean food. A lot of friends and family who care and who understand. I strive to not be a hermit. It takes too much energy at times to not be. But you give it your all. Your best. And move along through this life with IC.

9/27/17 by Cindy 600

Listen to your body and adjust accordingly.

6/10/18 by SaraLouise 2500

Lately, it really hurts in that area due to needing a more current surgery to burn and stitch up my ulcers—so many pelvis and lower back her. Also barely can hold my bladder and am in a lot of pain if I attempt to do so. When keeping up with your medications or treatment makes it more manageable and less impactful in your life.

4/11/21 by Shawna 1250
Translated from spanish Improve translation

You can live, but you can't be very happy if you want to have a child, as the medication is my way of living .

7/17/17 by Dany. Translated
Translated from spanish Improve translation

It is a process in which the acceptance of the limitations, it seems a purpose that is unattainable, but you can get to live well. Tap reevaluate all of our concepts, project life, and life itself. But something that I don't agree is that we condemn them to endure intense pain and that not just ask us to endure pain, but give cone if you don't have to. After passing by many urologists that told me that there was nothing to do and that I get used to not sleep, study, rest, and to be able to focus, an intense pain interferes with everything, I found professionals who did everything possible to help lessen the pain and they succeeded. I still believe that my pain is high, in some moments, and I restrict a lot but I'm struggling to handle it better. The conflict, in my opinion, is that the CI generates a little or a lot disabled by the pain, the tiredness and the urgency to urinate, a basic need of the human being who does not wait to be resolved, make it difficult to fulfill daily responsibilities and as our disability is invisible, so often are, unfairly, pressured to comply. This is something that comes and goes, some days are good, some bad, some facilities for the affected CI would be of much help. The possibility of having priority seating on public transportation, priority attention in health and public services, the possibility to ask for a bathroom in any place, and for those who are very affected a degree of disability sufficient to obtain a pension. But it is not to be frightened, and with diet and treatment to control the symptoms in most of the cases, but my pain and the urgency never go for me at all and I think it is fair to have more facilities to be able to have more freedom. I live happy, I found it hard, even hard for me, but if some things change, the access to the available treatments is easier and it encourages research about this disease, it is practically void of research, you can retrieve a lot of quality of life.

9/2/17 by Ana. Translated
Translated from spanish Improve translation

The happiness depends on the positivity of each person and the way it approaches. In my case I have 17 years suffering chronic pain both by fibromyalgia as cystitis intersicial and always try to look at something positive. There are people much worse than me, and with diseases of death.

11/23/17 by LPilar. Translated

Top questions

What is the life expectancy of someone with Interstitial Cystitis?

Celebrities with Interstitial Cystitis

Is Interstitial Cystitis hereditary?

Is Interstitial Cystitis contagious?

Is there any natural treatment for Interstitial Cystitis?

View more questions of Interstitial Cystitis

World map of Interstitial Cystitis


Find people with Interstitial Cystitis through the map. Connect with them and share experiences. Join the Interstitial Cystitis community.

There are 748 people in the map. View Map of Interstitial Cystitis