What is the life expectancy of someone with Intracranial Hypertension?

Life expectancy of people with Intracranial Hypertension and recent progresses and researches in Intracranial Hypertension



Intracranial Hypertension (IH), also known as pseudotumor cerebri or idiopathic intracranial hypertension, is a condition characterized by increased pressure within the skull. This elevated pressure can lead to various symptoms such as severe headaches, vision problems, nausea, and in some cases, even permanent vision loss. While IH can affect individuals of any age, it is most commonly diagnosed in women of childbearing age who are overweight or obese.



Determining the life expectancy of someone with Intracranial Hypertension is a complex task as it depends on several factors. The severity of the condition, the underlying cause, the effectiveness of treatment, and the presence of any comorbidities all play a role in determining the prognosis.



Treatment for Intracranial Hypertension primarily focuses on managing the symptoms and reducing the pressure within the skull. This often involves a combination of lifestyle changes, medication, and in some cases, surgical interventions. Weight loss, if applicable, is often recommended to alleviate symptoms and improve overall health. Medications such as diuretics may be prescribed to reduce fluid buildup and lower intracranial pressure. Surgical options, such as optic nerve sheath fenestration or shunt placement, may be considered in severe cases where other treatments have been ineffective.



It is important to note that early diagnosis and appropriate treatment can significantly improve the prognosis for individuals with Intracranial Hypertension. By effectively managing the condition and reducing intracranial pressure, many individuals are able to experience relief from symptoms and prevent further complications.



However, if left untreated or poorly managed, Intracranial Hypertension can lead to serious complications that may impact life expectancy. The increased pressure within the skull can cause damage to the optic nerves, leading to vision loss. Additionally, the persistent strain on the brain can result in neurological deficits and cognitive impairments. These complications can significantly impact an individual's quality of life and overall prognosis.



Research on the long-term outcomes and life expectancy of individuals with Intracranial Hypertension is limited, making it challenging to provide a precise answer. The available studies suggest that with appropriate treatment and management, the majority of individuals with Intracranial Hypertension can lead relatively normal lives and have a normal life expectancy.



However, it is important to recognize that each case is unique, and some individuals may experience more severe symptoms or complications that can impact their prognosis. Factors such as the presence of comorbidities, response to treatment, and overall health can influence the long-term outlook.



Regular medical follow-up is crucial for individuals with Intracranial Hypertension to monitor their condition, adjust treatment as needed, and address any emerging complications. By working closely with healthcare professionals, individuals can optimize their management strategies and improve their overall prognosis.



In conclusion, while it is challenging to provide a definitive life expectancy for individuals with Intracranial Hypertension, early diagnosis, appropriate treatment, and effective management can significantly improve outcomes. With proper care, the majority of individuals with this condition can lead fulfilling lives and have a normal life expectancy. However, it is essential to recognize the individual variability and the potential impact of complications on prognosis. Regular medical follow-up and adherence to treatment plans are crucial for optimizing outcomes and ensuring the best possible quality of life.


by Diseasemaps

It doesnt really have one

2/21/17 by Kate 1052

Hasn't been documented if life expectancy has been reduced. Complications include loss of vision, possible tumour if pressures are too high, shunts can become infected. Headaches are unbearable and possibly job loss. Currently no new development on how to overcome this condition..All findings are heresay

2/21/17 by Colleen 1000

Really a morbid question. It really depends on what you choose to do and how to handle the disease.

2/21/17 by Deirdra 1000

Life expectancy I believe is normal , I have heard those with the disease have a higher suicide rate which is sad but true. Those who can't find relief or a neurologist willing to listen and help I think can feel hopeless . It is a life changing thing you just have to try to be positive and proactive

2/21/17 by Bloomingbeauti 1102

The life expectancy for someone with intracranial hypertension is the same as a non-sufferer. The latest improvements include clinical trials in the UK for new medications and assisted weight loss to look for improvement in the condition among sufferers as they lose weight.

2/21/17 by Amy 1495

Life expectancy about 75 - 79 years. It is no different for people with IIH. There are however complicating factors, such as if you are shunted, you can be more prone to infections, that can cause life threatening diseases such as meningitis. If papilledema is not treated or you present with treatment resistant papilledema, you are at risk of vision loss. Research has shown that weight loss can contribute to the decline of symptoms and would be beneficial for your whole health. Optic nerve sheath decompression and fenestration and shunting has proofed to be successful but not perfect. Gastric bypass surgery can also assist overweight patients.

2/22/17 by Alet 1002

Although IIH just not cause death we can develop symptoms that are life thretening: Strokes Seizures Depression which has lead some to suicide Etc

2/23/17 by Diane 1053

I don't think there's a particular life expectancy.. other issues can lead to someone not being here.

2/24/17 by Maryssa 2100

Idiopathic intracranial hypertension is not considered a terminal illness, yet people do die from it. It might be labeled as effecting women of child-bearing age who are obese, but it also affects men and children. Risks include strokes, brain bleeds, seizures, infections from surgeries and lumbar punctures, and frequent hospitalizations.

8/12/17 by Christy 850

If you're being treated, you cannot die from IIH. If untreated, depends on you and your body. There is no definite answer. Just get treated asap!!

8/13/17 by LaurynPatterson 1750

Same as it was without the disease. There is risk with shunt surgeries with infection and things like that as in any surgery.

8/15/17 by Mommy2Five 1500

Just as any average person

8/15/17 by Lynne 1600

People with Intracranial Hypertension can live a full and healthy life.

8/18/17 by Unique cheatom 2120

As long as anyone els

10/18/17 by Sara 2000

normal life expectancy

10/19/17 by Julie 2000

same as any one else. we face many complications like infections , depression, illness

10/28/17 by lisa 3365

I'm unsure but confident in our medical technology and research.

10/29/17 by So 2000

Intracranial hypertension is not terminal. The biggest risk according to the medical profession is the risk of blindness. But there is also a huge risk to your well-being. There is a huge risk of functional disability and loss of quality of life, and there are many individuals who struggle with the pain and depression. Some individuals struggle so much they have ended their life. More research is needed on the quality of life issues for people with intracranial hypertension, and more research on addressing the ongoing pain issues that cause the functional disabilities. The intracranial research foundation is working towards this.

2/18/18 by Kelly 2560
Translated from spanish Improve translation

High always to relocate controls

6/7/17 by Lo. Translated

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