Lichen Sclerosus

What is the prevalence of Lichen Sclerosus?

How many people does Lichen Sclerosus affect? Does it have the same prevalence in men and women? And in the different countries?

Lichen sclerosus is a chronic inflammatory skin condition that primarily affects the genital and anal areas. It is more common in women, particularly postmenopausal women, but can also occur in men and children. The exact prevalence of lichen sclerosus is difficult to determine due to underdiagnosis and misdiagnosis. However, it is estimated that the condition affects approximately 1 in 70 women.

Lichen sclerosus is more prevalent in women, especially those who have reached menopause. It is believed that hormonal changes may play a role in the development of the condition. Additionally, lichen sclerosus can occur in men and children, although it is less common in these populations.

While lichen sclerosus can affect individuals of any age, it is most commonly diagnosed in middle-aged and older individuals. The condition is often characterized by white, patchy skin that is thinner than normal. It can cause itching, discomfort, and pain, and may lead to complications such as scarring and sexual dysfunction.

If you suspect you may have lichen sclerosus, it is important to seek medical evaluation and diagnosis. Early detection and appropriate treatment can help manage symptoms and prevent complications.

by Diseasemaps

Presumably, 1.7% of the population is said to have Lichen Sclerosus, with fewer than 2000,000 cases diagnosed each year. However, I believe it’s much more common than what is reported because not all seek out medical care due to shame and embarrassment, and many are misdiagnosed.

10/8/17 by Cindy 3050

It affects more women than men and in general the statistics show that it is largely post menopausal. I don't think this is correct. I host a fb support page and my statistics do not reflect that thought. I believe the stats are 1 to 3% of the population. I believe this to be completely and drastically understated.

10/9/17 by annie-mcg 2000

Lichen sclerosus affects mostly females, usually between the ages of 40 and 60 years. Cases involving younger females and males have also been identified in the medical literature in the United States, and cases have been reported that involve female children under the age of thirteen. Females are six times as likely to be affected as are males. Source: https://rarediseases.org/rare-diseases/lichen-sclerosus/

1/9/18 by LBelle 1550

Fewer the 200,000 cases per year. It is mostly found in middle aged women near menopause however it is also found in children, teens, young woman and men

8/25/18 by Tbreck 2500

Mostly menopausal women. Rare cases for men and children.

10/11/18 by Allicia 2500

Not enough research on Lichen.

4/26/19 by Kelly 3100

LS affects more women then men. It is estimated that LS affects roughly 1 in 100 to 1 in 1000 people. LS also affects children as young as 2 years old.

5/26/19 by Emma 3560

Was considered a rare condition. But with more awareness and communication... it is more prevelant...open discussions

6/12/19 by Ljstafford 1600

Approximately 1 in 30, mostly women. It is considered a RARE disease because there are apparently less than 200,000 person diagnosis in the USA yearly. The numbers are not accurate because of misdiagnosis, not seeing professionals to treat. Menopausal women in nursing home are not checked, how many are checked at public health centers. A few men are diagnosed. What is concerning is the number of ladies posting on the support groups that reportedly have young daughters and young grand children being affected. Then young women who state they have had the symptoms in early adulthood but not treated or confirmed until after child bearing.

8/22/19 by Diann 2500

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