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Celebrities with Lichen Sclerosus

What famous people have Lichen Sclerosus? Find out which celebrities, athletes or public figures have Lichen Sclerosus.

Celebrities with Lichen Sclerosus

Lichen sclerosus is a condition that causes patchy, discolored, thin skin. It usually affects the genital and anal areas. Anyone can get lichen sclerosus but postmenopausal women are at higher risk. It isn't contagious and can't be spread through sexual contact.


Lichen sclerosus is a chronic condition that has no cure. The cause of lichen sclerosus is unknown, but it may be related to an overactive immune system, genetic factors, or previous skin damage or irritation. Lichen sclerosus can also increase the risk of skin cancer in the affected areas.


Lichen sclerosus can cause various symptoms, such as itching, burning, pain, bleeding, blisters, sores, scarring, or narrowing of the openings of the vagina or urethra. However, some people may have no symptoms at all and are diagnosed incidentally during a pelvic exam or a biopsy.


The treatment of lichen sclerosus depends on the severity of the symptoms and the location on the body. The main goals of treatment are to relieve the itching and burning, improve the appearance of the skin, and prevent scarring and complications. The most common treatment is a topical steroid cream or ointment that is applied to the affected skin once or twice a day for several weeks or months. This treatment helps to reduce inflammation and restore normal skin color and texture. Other treatments that may be used in some cases include topical calcineurin inhibitors (such as tacrolimus or pimecrolimus), ultraviolet light therapy, oral retinoids (such as acitretin), or surgery to remove scarred tissue or widen narrowed openings.


There are some celebrities who have been diagnosed with lichen sclerosus or have publicly shared their experience with the condition. Here are five examples:



  • Emmylou Harris. Emmylou is a singer-songwriter and musician from the United States who has won 14 Grammy Awards and is known for her work in country, folk, and Americana music. She has collaborated with artists such as Bob Dylan, Dolly Parton, Willie Nelson, and Neil Young. She was diagnosed with lichen sclerosus in 2004 and has spoken openly about her condition and how it affected her self-esteem and sexuality. She has also advocated for more awareness and research on lichen sclerosus.

  • Jill Saward. Jill was an activist and campaigner from England who was known for her work on sexual violence and rape law reform. She was a survivor of a brutal gang rape in 1986 that became known as the Ealing Vicarage Rape. She was diagnosed with lichen sclerosus in 2012 and underwent surgery to treat her condition. She died in 2017 from a stroke at the age of 51.

  • Katie Piper. Katie is a model, author, and television presenter from England who is known for her charity work and her recovery from an acid attack in 2008 that left her with severe facial burns and blindness in one eye. She was diagnosed with lichen sclerosus in 2015 after experiencing painful symptoms in her genital area. She has shared her story and raised awareness about lichen sclerosus on social media and in her books.

  • Samantha Renke. Samantha is an actress, disability rights activist, and columnist from England who is known for her roles in films such as Little Devil (2014) and The Silent Child (2017). She has brittle bone disease (osteogenesis imperfecta) and uses a wheelchair. She was diagnosed with lichen sclerosus in 2018 after suffering from severe itching and bleeding in her vulva. She has spoken candidly about her condition and how it affects her intimacy and mental health.

  • Tara Langdale-Schmidt. Tara is an entrepreneur and inventor from the United States who is known for creating VuVatech, a company that sells vaginal dilators for women with pelvic pain conditions such as vulvodynia, vaginismus, lichen sclerosus, endometriosis, and interstitial cystitis. She was diagnosed with lichen sclerosus in 2014 after experiencing painful sex and skin changes in her vulva. She has used vaginal dilators to treat her condition and has helped thousands of women with similar problems.


These are just some of the celebrities who have lichen sclerosus or have spoken about it publicly. There may be others who have not disclosed their diagnosis or are not aware of it. Lichen sclerosus is a rare but distressing condition that can affect anyone, regardless of age, gender, or occupation. It is important to raise awareness and educate people about the signs, symptoms, diagnosis, and treatment of lichen sclerosus, as well as to support research and advocacy for better outcomes and quality of life for patients and their families.

Diseasemaps
11 answers
I am not aware of any at this time

Posted Aug 25, 2018 by Tbreck 2500
none that we know of.

Posted Oct 12, 2018 by Allicia 2500
Unknown at this time.

Posted Apr 26, 2019 by Kelly 3100
I am unaware of anyone coming forward.

Posted Apr 28, 2019 by Debbie 1680
As far as we know there are no celebrities with LS.

Posted May 26, 2019 by Emma 3560
No one of notoriety has come forth. So to bring awareness out is very very difficult. Why would they want to publically admit they have pain, and burning and itching between their legs, that is hurt like everything to urinate or have a bowel movement, that they are limited having intercourse. Would they come forward and say they do not feel like a complete woman, that their labia is fused together and their anatomy no longer looks natural. That scars may grow over the clitoral hood.As much as I pray we could get a popular spokesperson I do not see it happening.

Posted Aug 22, 2019 by Diann 2500
What a shame, they could highly raise awareness of this awful condition!

Posted Jan 7, 2020 by William10 100
I believe sooner than later celebrities with Lichen Sclerosus will speak out. I was an aspiring actress and professional dancer until my auto immunity began eating away at my self esteem and undiagnosed chronic illnesses. I have vowed to speak out and create Lichen Sclerosus awareness content and advocacy and have been reached out to by all sorts of people men and women that would like to come out to the public but, do not feel supported enough at the moment.

If people would share and tag Lichen Sclerosus content just as much as they are willing to share other publicly supported causes such as breast cancer awareness for instance... the mission would be well on it’s way to getting the media coverage, education, funding, research, support etc. that it all well deserves to chase a cure

Posted Oct 24, 2020 by Christel 600
I’m not famous as in a celebrity star we see on TV or whatever. However I suffer from Lichen Sclerosis which is so rare it makes me famous? I guess. I was just diagnosed about 1 month ago. And therapy doing well. I’m using Clobetasol, Ketoconazle, and oral Fluconazole. Since this disease has so little carriers or ones who want to be public, I would love to be a spokesperson!! Medical people, drug reps, doctors, teachers whoever I will have be your famous!! I want to be others supportive network! [email protected]

Posted Sep 20, 2021 by Barbie 100
I am not a celebrity, I am an 84 year old lady who has been suffering the absolute agony of lichen sclerosis for a long time and have felt suicidal because of all the problems it causes.
I can no longer stand underwear as it aggravates what is already an untenable discomfort. I have to wear skirts rather than my preferred trousers and it's cold and miserable.
It hurts to urinate and attempt to dry myself after this procedure as it is so sore and itchy and almost impossible to not want to rub it, knowing this will exacerbate the problem.
I was told the only hope is to have my vulva sealed up, leaving just an area to urinate from.
I have contacted the surgeons secretary to plead for this procedure, although I feel for my mental state, as this is my womanhood that I should be losing, but that is how desperate this dreadful disease makes me feel,. Suicidally depressed!
I can tolerate pain, but this is chronic and constant.
I have tried coconut oil, and prescribed medication but I get no relief from the symptoms.
I am truly desperate for relief from this nightmare as I also have osteoporosis in my back, hips and knees.
Tears are never far away...please help.
Thank you
Sheila Stokes ms.

Posted May 27, 2022 by Cypriana 100

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Stories of Lichen Sclerosus

LICHEN SCLEROSUS STORIES
Lichen Sclerosus stories
Just diagnosed last year. Symptoms have now started to become uncomfortable and are worse than I thought they were. Not taking any treatment. Dermatologist told me to only use the steroid cream if the symptoms were bad. discovered the facebook page 2...
Lichen Sclerosus stories
Diagnosed in 2011 at the age of 47, after the initial itching rash was resolved by Clobetasol, the only remaining symptom was painful intercourse. Then, a couple years later I started having mostly daily burning of the vulva, and irritation of the u...
Lichen Sclerosus stories
Diagnosed aged 40. Went into remission using clobesterone ointment. Began flaring slightly before periods as menopause began. Currently aged 53 and experiencing disappearance of architecture. Not much in way of itching thank goodness. No tears. I use...
Lichen Sclerosus stories
After a diagnosis of RA in 2001 the goal was to keep going. I finally took an early retirement in 2006. Chronic Fatigue soon became evident. In 2016 my symptoms began manifesting themselves. I thought it was a yeast infection. I thought I had an...
Lichen Sclerosus stories
Started itching April 2016 used various creams over the counter at chemist

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