Ethan's Story
On Christmas Day 2008 my son Ethan was born with a snowflake disability called Lipomyelomeningocele a form of Spina Bifida. Spina Bifida is a neural tube defect that happens within the first three months of pregnancy. Ethan was also born with a tethered spinal cord and a very rare enlarged bladder four times too big. He has a facebook page with over 1400 followers so far to help share his story and spread awareness about SB. https://www.facebook.com/Ethansstory
Find people with Lipomyelomeningocele through the map. Connect with them and share experiences. Join the Lipomyelomeningocele community.