Hi My Name is Zuleyka im 9 years old and I have Morquio syndrome type A as well and I'm in third grade how are you doing?
Hello, ma name is alexanne and I am 15, i'm from québec. For my english class, I have to follow someone living with the morquio syndrome. I am really interested about learning more 'bout what you're living through and you seemed nice! I was really sad when I learned that there's no known-cure for it as i'm fully in medical' word (i want to become a doctor, but anyway it's not in the subject and i don't even think that this information is in its place in this sentence, i'm not completely bilingual ahha). I hope that you will accept to talk with me to let me know how really nice you are ;) and what you're living through! However, let me hear about you soon! You can join me to alexanne155@gmail.com or by facebook, Alexanne Robert-St-Denis, or even here, i'll look often! ;) xx thanks for all.