Which are the symptoms of Narcolepsy?

See the worst symptoms of affected by Narcolepsy here


Symptoms of Narcolepsy


Narcolepsy is a chronic neurological disorder that affects the brain's ability to regulate sleep-wake cycles. It is characterized by excessive daytime sleepiness, sudden loss of muscle tone (cataplexy), hallucinations, and sleep paralysis. These symptoms can significantly impact a person's daily life, affecting their ability to work, drive, and engage in social activities.



Excessive Daytime Sleepiness (EDS)


Excessive daytime sleepiness (EDS) is the hallmark symptom of narcolepsy. Individuals with narcolepsy often experience an overwhelming and persistent need to sleep during the day, regardless of how much sleep they have had at night. This excessive sleepiness can make it difficult to stay awake and alert, leading to impaired concentration, memory problems, and decreased productivity.



Cataplexy


Cataplexy is a sudden loss of muscle tone triggered by strong emotions such as laughter, surprise, or anger. It is a unique symptom of narcolepsy and can range from mild muscle weakness to complete paralysis. During a cataplectic episode, individuals may experience drooping of the face, slurred speech, buckling of the knees, or even collapse. Cataplexy can be highly disruptive and may cause embarrassment or injury.



Hypnagogic and Hypnopompic Hallucinations


Hypnagogic hallucinations are vivid, dream-like experiences that occur while falling asleep, whereas hypnopompic hallucinations occur upon waking up. These hallucinations can be visual, auditory, or tactile and are often frightening or disturbing. Individuals may see vivid images, hear sounds, or feel sensations that are not actually present. These hallucinations can be difficult to distinguish from reality and can cause significant distress.



Sleep Paralysis


Sleep paralysis is a temporary inability to move or speak while falling asleep or waking up. It occurs when the brain transitions between sleep and wakefulness and is often accompanied by vivid hallucinations. Sleep paralysis can be a frightening experience as individuals may feel trapped or unable to escape. The episodes typically last for a few seconds to a few minutes but can be highly distressing.



Fragmented Nighttime Sleep


People with narcolepsy often experience fragmented nighttime sleep. They may have difficulty maintaining a continuous sleep pattern and frequently wake up throughout the night. This can lead to insomnia, frequent awakenings, and a feeling of unrefreshing sleep. As a result, individuals with narcolepsy may feel perpetually tired and struggle to achieve restorative sleep.



Other Symptoms


In addition to the primary symptoms mentioned above, narcolepsy can also cause other secondary symptoms, including:



  • Automatic behaviors: Individuals may perform routine tasks without conscious awareness or memory.

  • Microsleep episodes: Brief episodes of sleep that can occur during activities such as driving or working, leading to potential accidents.

  • Weight gain: Some individuals with narcolepsy may experience weight gain due to decreased physical activity and metabolic changes.

  • Depression and anxiety: The chronic nature of narcolepsy and its impact on daily life can contribute to the development of depression and anxiety disorders.



If you or someone you know is experiencing these symptoms, it is important to consult a healthcare professional for a proper diagnosis and appropriate treatment. Narcolepsy is a lifelong condition, but with proper management, individuals can lead fulfilling lives and minimize the impact of symptoms on their daily activities.


by Diseasemaps

Obviously the excessive daytime sleepiness. It's hard to function as a normal person when your entire life revolves around sleep.

3/2/17 by Rachael 1050

Constant brain fog. Daytime sleepiness,

3/2/17 by Sarah 1000

Excessive daytime sleepiness, inability to wake up, brain fog, lack of drive to do things in spare time, forgetfulness, extreme nightmares

3/2/17 by Haley 100

The constant feeling of tiredness and brain fog. I can't remember well. The drugs have side effects. I have a mild form of cataplexy to others but still need to watch my emotions.

3/3/17 by Dawnie73 600

Daytime Sleepiness, Paralysis, Cataplexy, Hallucinations, Brain Fog

4/27/17 by Jennah 1100

Excessive daytime sleepiness and the inability to be awake when you need to be.

4/28/17 by Emily 1115

For me it's the cataplexys but also the lack of motivation to do things and not sleep all day long.

5/7/17 by Malin 1050

A person with Narcolepsy is constantly tired, have a hard time staying awake when doing something like sitting in a car, watching tv or other things sitting/laying down. Many of us have also cataplexys, which making us loose control over our muscles, for example in the legs, arms, face, tounge etc. We can basically go to sleep at any time during the day. We also have a hard time falling asleep at night, many have nightmares, hallucinations, and sleeping paralysis. Many sleep very bad during the night and wake up many times. Many of us have a hard time concentrating, and also very sensitive to for example sounds and noises. Many also have hard to remember things and have a bad memory.

5/7/17 by 450

Cataplexy and sleep paralysis. Excessive daytime sleepiness and insomnia. Mild symptom is autonomic behavior.

5/10/17 by Susan 1000

Excessive daytime sleepiness

5/10/17 by Andrea 350

Most limiting: Excessive daytime sleepiness, microsleeps, cataplexy, lack of deep sleep, and energy levels. I would get rid of the excessive daytime sleepiness/microsleeps and cataplexy. These symptoms are what limits me the most in functioning normally. I spend the majority of the day sleeping, never actually experiencing what a full day is. I have severe insomnia at night, my energy levels increase at night. I wish I could have good sleep instead of just REM sleep. I never feel refreshed in the morning after I sleep.

6/3/17 by Tabbij13 830

Firstly, the obvious one being excessive daytime sleepiness. It is the most crippling factor of the condition, and the primary one. Secondly, if you have Narcolepsy with Cataplexy then I would say Cataplexy is the next worst symptom. Overall there are a lot of minor symptoms which result from both the medication and the disorder, but these are many in number and vary for the individual so it would not be pertinent to list them here. Finding a balance in medication and sleep hygiene is crucial for minimising these symptoms which can reach high severity levels if ignored and diet and lifestyle changes aren't made.

6/12/17 by Ldparks 200

Sleepyness unable to stsy aeake unsble to finction.

6/12/17 by Faith 2000

Excessive daytime sleepiness Memory loss

6/13/17 by Karen 2000

Excessive Daytime sleepiness

8/17/17 by Laurie 2271

Constantly feeling exhausted.

9/15/17 by Erin 100

Excessive sleepiness and cataplexy are the worst symptoms of Narcolepsy. Automatic behavior and micro-sleep attacks can make life very difficult. Sleep paralysis with vivid dreams can be anxiety provoking.

9/26/17 by joyce 200

Always being tired and sleepy

9/30/17 by Joel 600

Excessive daytime sleepiness and cataplexy (temporary paralysis triggered by emotion)

10/6/17 by Aaron 2811

The inability to get restful sleep is the root cause of most of my issues, it's the cause of my daytime sleepiness & memory issues. The second one would be the sleep paralysis & hallucinations.

10/24/17 by Ali 700

The very biggest issue with Narcolepsy is the absolute brain-dead tiredness. When a "nap attack" happens it is virtually impossible to stay awake at all. And if one does manage to remain awake in this condition, his (or her) actions may resemble that of a sleepwalker. Thoughts are muddled and the Narcoleptic Patient becomes very irritated with themselves and at the thought of an imminent nap which will hinder any activity or chore that was planned for the day... As a Narcoleptic Patient I must sleep almost immediately when the attack happens... I sleep for roughly two hours every four hours. I can sleep anywhere, anytime... Except at night.

10/26/17 by Jen W 200

The worst symptoms of Narcolepsy for me are cataplexy and "brain fog" and memory loss. If. I can indeed get rid of cataplexy with medications but nothing seems to help the brain fog and memory issues.

10/26/17 by Cyn 610

Hipersomnya Irresistible sleep atacks Muscle weakness You can have cataplexy or not (you can even colapse) Memory loss Automatic behavior Cognitive deficit Lack of attention Trembling Spasms Sensations through all your body Pain Migrain Sensation you are in a dream hipnagogic hallucinations Hiperfagia (sudden appetites) A kind of vertigo Facial paralysis Palpebral ptosis loss of vision (temporary) Zombie like state (like you are not There) Pain Etc etc etc

11/21/17 by sns 1510

Excessive daytime sleepiness and sleep attacks are some of the most limiting symptoms of narcolepsy without cataplexy. In PWN w/C, the cataplectic attacks are very limiting to a person's life. In all PWN (with or without cataplexy), interrupted sleep is also debilitating. The interrupted sleep, the night terrors, the hallucinations... It all lends itself to a state of constant exhaustion and confusion. If I could get rid of some symptoms, the first ones would be the interrupted sleep (I think I would give almost anything for a solid night sleep!) and the sleep attacks.

5/21/18 by chazer25 3050

Unfulfilling Sleep, irregular sleep patterns, excessive daytime sleepiness, insomnia

5/25/18 by Brandi 300

Day time sleepiness, rem sleep majority of the time, sleep paralysis and hallucinations upon waking. This can be with or without cataplexy. Sleep paralysis and hallucinations are very scary, I couldn’t myself lucky not to have experienced this symptom. Day time sleepiness makes driving and working very hard. I’ve always had to work on my feet. If I sit down I will fall asleep. Cataplexy is the hardest for me. I never fall completely out but my knees get weak when I’m laughing and I usually end up on the ground. My arms and legs are always heavy and a constant reminder of the disease. If I could take anything about my disease away it would be the cataplexy. Though medicine has helped control these symptoms as well. I imagine if I had sleep paralysis and hallucinations I would want those eliminated more but I haven’t experience it. I’ve had mild sleep paralysis but never hallucinations.

7/7/18 by Casey Veater 1100

Constant day time sleepiness, having trouble finding motivation to do things, suddenly falling asleep/passing out in public places (such as classes, restaurants, cars, public transportation). Feeling depressed or down, basic tasks require a lot of energy from you, you have issues partaking in social events because they tire you too much.. Possible extra is that roughly 70% of the narcoleptics also have cataplexy, which is a sudden loss of muscle tension in certain limbs when you feel a certain emotion (often laughter or shock)

11/3/18 by Isabelle 200

Being tired all the time.

4/16/19 by KLebal 300

Excessive sleepiness during the day, trouble sleeping at night, sudden muscle weakness (called cataplexy), and increased body temperature when sleepy. You may also get hallucinations at night and experience sleep walking.

8/4/19 by Ottery 1300

Over sleeping and sleep par.

10/13/21 by corbinhope101@gmail.com 1700

Note… Not all patients have all symptoms Disregulated sleep-wake cycle Hypocretin/orexin deficiency Excessive daytime sleepiness Cataplexy Sleep paralysis Automatic behaviors Hypnagogic and hypnopompic hallucinations Genetic markers on HLA-DQB*06.02

10/13/21 by MandyW 600

Extreme daytime sleepiness

7/13/23 by Feri Ascencion 1833
Translated from spanish Improve translation

episodes of sleep throughout the day. Cataplejias

4/27/17 by marisa rosello. Translated
Translated from french Improve translation

Fatigue (physical and psychological) The Drowsiness The cataplexies

4/27/17 by Laïli. Translated
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♤ Sudden attacks of sleep ♤ Irritability ♤ Difficulties of coordination ♤ Feeling of not mastering the body ♤ Fatigue generalized

7/22/17 by . Translated
Translated from spanish Improve translation

Daytime fatigue excessive, excessive need of sleep, cataplejias, muscle atonia.

11/2/17 by Juan. Translated

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