World map of Ollier disease


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Ollier disease stories


JAMES' STORY


On Wednesday 8th April 2009 at 1:23pm my amazing miracle James Paul Myles arrived into the world, as soon as he was placed in my arms he was my life, no feeling could ever compare to that day. When James was 2 years old he had several accidents that...

Views: 651 Apr 9, 2016, 4:18 PM by Sarah Jane

GEORGE'S STORY


George is my 5 year old son who was diagnosed with Olliers 3 years ago he has it in his fingers, arm, shoulder, ribs, hip, leg, knee, ankle, foot and toes on his left side and also his it in his collarbone and his hip on his right side. He's always s...

Views: 591 Apr 10, 2016, 4:03 PM by George

MY SON WITH OLLIERS SYNDROME.


My son fell and broke his knuckle over his little finger when he was 5 years old.  During xray, when they took a look at his pictures, they saw that he had broken bones in his hand multiple times before. He has never expressed any form of pain...

Views: 583 Apr 11, 2016, 3:52 PM by Kai

MAFFUCCI


I'm married; I have 3 kids (°2012, °2013, °2016). The eldest, my daughter has maffucci. Ollier was diagnosed at the age of 2; Maffucci at 4. We're under supervision @Ghent and Brussels

Views: 482 Jun 17, 2016, 2:11 PM by Mari anne

MY PRECIOUS GRANDBABY


In 2011 

Views: 450 May 20, 2016, 6:16 AM by Melissa

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