Oral-Facial-Digital Syndrome

World map of Oral-Facial-Digital Syndrome

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Oral-Facial-Digital Syndrome stories

MY OFD

I am a 27 year old female who was born with a rare syndrome known as OFD-1 or Oral Facial Digital Syndrome Type 1. It affects my teeth, tongue, nose, fingers, toes, and scalp. I have severe TMJ. My jaws are misaligned and its very painful w...

Views: 301 May 21, 2017, 2:13 PM by Ashley Narragon

DAUGHTER BORN WITH OFD1

Views: 281 Jul 3, 2018, 10:37 PM by carolyn

GEORGIE

Views: 227 Sep 13, 2017, 5:52 AM by Natalie

DAUGHTER WITH OFD

Views: 209 Sep 12, 2017, 6:16 PM by Tam

GRETA IS BORN IN 2016, WE GOT THE DIAGNOSIS IN THE BEGINNING OF 2019

Views: 183 Jan 6, 2019, 11:09 AM by Carolin and Greta (birth date in 2016)

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