Oral-Facial-Digital Syndrome
Greta is born in 2016, we got the diagnosis in the beginning of 2019
Our daughter Greta has OFD1 syndrome. At birth she had a median cleft lip and a tongue band that was too short. She had her first tooth at birth but it had to be removed. She is now 2 3/4 years old and has a slight developmental delay. For example, she did not walk until she was 24 months old and only now she begins with 2 word sentences.
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