My grandson was just diagnosed with Bilateral Perisylvian syndrome. He has digeorge syndrome as well so we didn't think too much about the developmental delays and the aphasia. But he fell and got a subdural hematoma and they caught in on the CT scan and now three CT scans and six months later we have a diagnosis. I would love to follow your story or become friends on facebook, is there a facebook group? If not we should make one. I need to talk to someone with experience. It's scary having a new diagnosis and even the doctors don't know that much about it. I was glad to read your story and I wish you and your boys all the best.