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's interview
How did all start?
First My diagnosis were sifilis I treat it 2 times. Than they said that their were wrong. And I went to registry of bone marrow transplant donors and a specific antibody and with the sintoms they finished the lupus diagnose.
Do you already have a diagnosis? How long did it take you to get it?
More than 15 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
Rheumatologist and the most important is nephrology
What has been the most useful thing for you so far?
People start to believe in my pain and fadige
What have been your biggest difficulties?
Don't know what was happening with me
How has your social and family environment reacted? Have your social or family relationships changed?
They started to help me. They were trying to understand me
What things have you stopped doing?
Sports it causes too much pain
What do you think about the future?
I dont know here in brazil everything is dificult
So far, which years have been the best years in your life? What have you done during them?
15 . I was a volleyball player
What would you like to do if you didn’t have your condition?
Sleep under the sun
Play contact sports
Live again
If you had to describe your life in a sentence, what would it be?
I just still living. Thank god that i have my job.
Finally, what advice would you give to a person in a similar situation?
Faith. Live each day as the last.
