World map of Pulmonary Fibrosis


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Pulmonary Fibrosis stories


LEARNING TO LIVE WITH PULMONARY FIBROSIS


When i was diagnosed with idiopathic pulmonary fibrosis in 2006 i was told very little aboutbthe illness apart from the fact that all the treatments were toxic so they wouldn't treat me with them.  i used google and found lots of negative news. ...

Views: 711 by malcolm weallans

APOYO


Hola amigos, he vivido la fibrosis pulmonar muy de cerca y a la fecha brindo apoyo y sugerencias a familias que tienen a un miembro con fibrosis pulmonar. Estaré encantada de orientarlos, pueden ubicarme en la página https://www.fa...

Views: 675 by Pamela - Fibrosis Pulmonar Perú fanpage

MICHAEL FROST'S STORY


After suffering for 3 years I was very lucky to receive a double lung transplant. I have had 2 small bouts of rejection but on the whole I haven been exceedingly lucky. I still get tired and have to nap 3-4 times a week in the afternoon but I am also...

Views: 618 by Michael Frost

HOW I FOUND MYSELF IN THE PULMONARY FIBROSIS COMMUNITY


In 2003 my mom was diagnosed with a disease we had never heard of - Idiopathic Pulmonary Fibrosis.  She was very late in the disease (after having been mis-diagnosed for many years).  She was given 2 years to live.  Due to her positive...

Views: 545 by Taleena Koch

RIP A J JONES


im alberts daughter dad sadly died of ipf in july 2013 after less than year diagnosis. and the family are fundraising with the blf to raise awareness

Views: 533 by albert jones

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