Is it advisable to do exercise when affected by Relapsing Polychondritis? Which activities would you suggest and how intense should they be?

Walking helps. Light exercise. If we do to much we get down for a few days.

4/26/17 by Freya 1000

Again everyone is different as rp affects different parts of the body.

4/27/17 by Lisa Matthews (Lissy) 4800

It is a must. Best exercise is swimming and yoga.

4/27/17 by Laoura 2050

I would love to be able to walk but it appears that I now have done sort of autoimmune disease affecting my nerves and muscles of my legs. I am waiting to see a neurologist. I experience fasciculations, pain and pins and needles in my legs and arms at the moment, do I am unable to walk much.

8/9/17 by Louise C 1450

I believe it is. I was once an avid gardener, equestrian & loved sports but RP changed most of that for me. I now walk, swim & anything that I feel helps me stay active without causing increased pain.

8/14/17 by Susan 2000

I believe in exercise, but I when I am in a flare, I find it impossible. My body needs a lot of rest when I am flaring. It is difficult to get up and down from a chair. I don't sleep well during a flare. So I try to rest until the flare is over.

9/1/17 by Diane 2050

I have been able to do a regular exercise regimen (began in February), although there are times I need to rest from a previous day if it was a tough workout. My knees and hips are the worst, but sometimes my elbows and shoulders can be an issue. There are times after exercising - next day, its difficult to get up from a sitting position or do stairs - very sore. But I think it is important to keep in motion and do all I can to keep myself strong. Sometimes I think others in my class are like, oh, she is not here again. I average 2-3 days a week vs, the full 4, but its really all I can do. I am just happy to be doing more than I was!

5/13/19 by Laurie C. 100

Low impact regular exercise if possible

6/11/19 by Brooketaylornp@gmail.com 1000

Mild exercise. Sitting work and mild walking

6/12/19 by Tmrcarlson 3550

Exercise is recommended in everyone’s daily activities whether they have relapsing polychondritis or not. However it is up to the individual what they can manage dependant on their disease control, fatigue and pain and joint involvement. Some attend a physical therapist for assistance, some do hydrotherapy, some walk and many go to the gym.

6/12/19 by Kaz 3000

It's not advisable to exercise during a flare, however gentle walking and flexing exercises are beneficial.

12/30/19 by Leanne 2500

It depends on the persons symptoms and where the disease affects their body. Keeping moving gently where possible is always advisable,

12/30/19 by Carrie 3050

when I suffer a relapse, I take prednisone and resume normal activity within two hours but I do not exert.

3/20/22 by shlawver 2500

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I can only do water aerobics...

10/2/17 by Ana Luiza Bottura. Translated

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Bike or walk

10/2/17 by Kevin Ochoa. Translated

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Yes, but with a low intensity and with fairly often. I seem to be good at the Pilates and swimming.

10/2/17 by cmomo. Translated

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It is always good to the sport, to strengthen muscles and keep us active. I believe that the best sport is practiced in the water. But it's either that the patient be able to do.

10/2/17 by Glaucia. Translated

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Sport is always good, even if it's things as well smples, only the fact of the person get around in ja is something valid. In my case I practical aerobic exercises of medium to high intensity, I try to do 5 to 6 times a week, for me it works. I confess that before knowing this diagnosis not take care much of my health as now.

10/2/17 by Carolina. Translated

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Swimming if you are found with forces

10/2/17 by Sandra. Translated