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What is the life expectancy of someone with Relapsing Polychondritis?

Life expectancy of people with Relapsing Polychondritis and recent progresses and researches in Relapsing Polychondritis

Relapsing Polychondritis life expectancy

Relapsing Polychondritis (RP) is a rare autoimmune disease characterized by recurrent inflammation of cartilage throughout the body. The prognosis for individuals with RP varies widely depending on the severity and extent of organ involvement. While it is difficult to predict the exact life expectancy, early diagnosis and appropriate treatment can significantly improve outcomes.


Medical management typically involves the use of immunosuppressive medications to control inflammation and prevent damage to vital organs. Regular monitoring and follow-up with healthcare professionals are crucial to manage symptoms and minimize complications.


It is important for individuals with RP to maintain a healthy lifestyle, including a balanced diet, regular exercise, and avoiding triggers that may exacerbate symptoms. Additionally, emotional support and counseling can play a significant role in managing the impact of the disease on mental well-being.


While RP can be a challenging condition, with proper medical care and self-management, individuals can lead fulfilling lives.



Relapsing Polychondritis (RP) is a rare autoimmune disease characterized by recurrent inflammation of cartilage throughout the body. It primarily affects the ears, nose, joints, and respiratory system. The exact cause of RP is unknown, but it is believed to involve an abnormal immune response that mistakenly attacks healthy cartilage.



Due to the rarity of RP, there is limited data available on the life expectancy of individuals with this condition. The disease can vary widely in its severity and progression, making it challenging to provide a definitive answer. The prognosis for RP depends on several factors, including the organs involved, the extent of cartilage damage, and the response to treatment.



RP can affect multiple organs, including the ears, nose, eyes, respiratory system, heart, and blood vessels. The inflammation can lead to various complications, such as hearing loss, difficulty breathing, heart problems, and vision impairment. The severity of these complications can significantly impact life expectancy.



Early diagnosis and appropriate treatment are crucial in managing RP and improving outcomes. The goal of treatment is to control inflammation, relieve symptoms, and prevent or minimize organ damage. Medications such as corticosteroids, immunosuppressants, and nonsteroidal anti-inflammatory drugs (NSAIDs) are commonly used to manage RP. In severe cases, surgery may be required to repair or replace damaged cartilage.



RP is a chronic condition characterized by periods of remission and flare-ups. During remission, symptoms may be minimal or absent, allowing individuals to lead relatively normal lives. However, flare-ups can be unpredictable and cause significant discomfort and organ damage.



It is important for individuals with RP to receive ongoing medical care and closely monitor their symptoms. Regular check-ups, laboratory tests, and imaging studies can help assess disease activity and detect any complications early on. Adhering to treatment plans and making necessary lifestyle modifications, such as avoiding triggers and maintaining a healthy lifestyle, can also contribute to better outcomes.



While RP can be a challenging condition to manage, advancements in medical knowledge and treatment options have improved the prognosis for many individuals. With appropriate care and support, individuals with RP can lead fulfilling lives despite the chronic nature of the disease.



In conclusion, the life expectancy of someone with Relapsing Polychondritis can vary greatly depending on the individual and the severity of the disease. Early diagnosis, proper treatment, and regular medical care are essential in managing RP and improving outcomes. Although RP is a chronic condition, individuals can experience periods of remission and lead fulfilling lives with appropriate care and support.


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17 answers
It depends on the are being affected. If your trachea is affected you could die if you don't get to the hospital in time. It can affect your heart as well and any other organs. No one knows how long we will live.

Posted Apr 26, 2017 by Freya 1000
If given the correct medication and health care there is no reason to believe life expectancy is Any different. Obviously where airways are affected then this is the most life threatening

Posted Apr 27, 2017 by Lisa Matthews (Lissy) 4800
Not sure but taking in consideration the new medicines and bilogics i believe that RP will not be a fatal dicease in the near future.

Posted Apr 27, 2017 by Laoura 2050
No one really knows the answer to this question. There is not enough research to answer this. Medication advancements change things, so who knows. I depends on how an individuals body is coping and what areas are affected.

Posted Aug 9, 2017 by Louise C 1450
I honestly believe something else other than RP may "get me". I didn't believe that when I was younger by the way but being almost 60, I do.

Posted Aug 14, 2017 by Susan 2000
I have no idea. It would depend on the degree of seriousness with your RP and what areas of your body are affected. Of course, the throat is dangerous. That is probably our worst fear.

Posted Sep 1, 2017 by Diane 2050
Not sure. They say 5 years. But I have had this diagnosis for 9 years and doing well.

Posted Jun 11, 2019 by [email protected] 1000
Lessened by 5-10 years with no help. Less by a few years with help

Posted Jun 12, 2019 by Tmrcarlson 3550
The life expectancy is better now than previously reported in research papers as you will read on the internet. The highest risk with Rp is when there is tracheal or heart involvement or organ involvement like kidneys and liver. A lot of people in the support groups have reported having the disease 20+ years.

Posted Jun 12, 2019 by Kaz 3000
I have kidney involvement at age 38, now on 1st transplant, also being affected. The research shows 10 yrs w kidney involvement

Posted Jun 30, 2019 by Missy 100
There is no life expectancy. This disease will wax and wane

Posted Dec 30, 2019 by Leanne 2500
It depends on what area is affected, usually good but if airways are affected it can be more problematic

Posted Dec 30, 2019 by Carrie 3050
If you survive the first three years, you will most likely live 5 to 10. If you survive 15 years, you stand a pretty good chance of 25-35. That said, I have survived 34 since the first relapse. I hope for another 9 years.

Posted Mar 20, 2022 by shlawver 2500
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Some articles that I read, the speech 5-7 years of survival,but in fact no one of this information.
It was all very vague

Posted Oct 2, 2017 by Ana Luiza Bottura 2000
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You can live a long, your life does not change... only now you have to be more cautious with your body

Posted Oct 2, 2017 by Kevin Ochoa 2000
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With new drugs I think the life expectancy is similar to that of any person if there are no complications of the trachea or the heart

Posted Oct 2, 2017 by Sandra 950

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RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
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It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
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i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
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I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...
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I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...

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Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
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I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

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