Relapsing Polychondritis prognosis

What is the prognosis if you have Relapsing Polychondritis? Quality of life, limitations and expectatios of someone with Relapsing Polychondritis.

RP can be life threatening, debilitating and difficult to diagnose and prognosis is variable, depending on organ involvement and treatment complications. Where the disease is mild or responds quickly to treatment, there is a good prognosis.

3/20/18 by Lisa Matthews (Lissy) 4800

Death from breaking down of trachea and heart and kidneys

6/12/19 by Tmrcarlson 3550

The long-term outlook (prognosis) for people with relapsing polychondritis (RP) varies from person to person. In general, RP is a chronic and progressive (worsening overtime) condition. Some form of disability is common in the later stages of RP; these may include visual impairment, hearing loss, vestibular dysfunction, and/or cardiopulmonary (heart and lung) disease. Severe cases of RP can be life-threatening. Respiratory complications (windpipe collapse and infections) are the most common cause of death followed by cardiovascular (heart and blood vessel) involvement.

6/13/19 by Kaz 3000

Nobody can tell you how it will affect you. I have had it for 35 years. It will come and go, and it can get better if treatment focuses on stopping the flares

12/30/19 by Leanne 2500

The outcomes for people with polychondritis vary a lot. People whose lungs are affected may have a shorter life span. However, disease which is more mild or responds quickly to treatment can have an excellent prognosis. Despite the fact that many patients have some problems with hearing, eyesight or breathing, RP is often chronic but tolerable.

12/30/19 by Carrie 3050

Death can be prolonged with medication.

3/20/22 by shlawver 2500

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