My biggest issue

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I was always a weird child, not like others. In the kindergarten and primary school it seemed normal, because children don’t care about appearance, but then I started to realize that something is wrong with me, my face and body don’t look the same as my classmates. All my life I thought that I’m just unlucky to get all of “bad”genes of my parents and only this year I found out I have trichorhinophalangeal syndrome. I don’t want to lie and say that everything is okay, because it’s not, I struggle with a lot of things connected with the way that I look, I want to be normal, not to have this syndrome, but I have no power to change it. So I fight with bad mood every day, but it’s better than to do nothing at all. In the end of day, there is so much more in this world to experience so I don’t have right to feel sorry for myself. I already was given the best opportunity - to be able to live, so I’m not gonna lose it