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Russell Silver Syndrome stories
My son was born in 2010.
He was failing to thrive no matter how much i fed him.
When he was 3 we finally had genetic testing done our doctor was actually looking for something else when they discovered mupd7.
Hes now 6 years old and is also ...
Views: 630 Dec 12, 2016, 10:40 PM by Teresa
Our daughter Nancy Beatrice Nolan joined the world 3 weeks early on 19th August 2014, weighing in at 5lb 4.5oz.
In the weeks and months that followed Nancy failed to grow or gain weight as you would expect a baby would . She wasn’t takin...
Views: 564 Dec 23, 2016, 1:25 AM by Lorraine
my son harry is 4. He was diagnosed with RSS this year matUPD7.
Views: 447 Dec 13, 2016, 5:43 AM by Rachel
Jordan is 13 now, he was diagnosed at 3 by a geneticist at Yale. He's been on growth hormone for years.
Views: 387 Aug 22, 2017, 6:06 AM by Staci
izaiah
My son Izaiah was born in December 2013 he was born with hlhs and shones syndrome but hes had lots of heart surgery and hasn't been to well so we put him not growing down to that but this year I asked about dwarfism and we went to see a...
Views: 314 Aug 21, 2017, 4:42 PM by Jennifer
Russell Silver Syndrome forum
Hello I'm new here and have been searching for support with RSS I have never met anyone that has it and I've been very alone with this all my life
Views: 364 Sep 16, 2017, 3:45 PM by Sassy kitten 93
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