Which are the symptoms of Sarcoidosis?

I habe neurosarcoid .So I think the worse part about it is the decreased mobility and loss of balance.

4/1/17 by Andrena Senola 400

That is very hard to determine since Sarcoidosis affects everyone differently. For me it is the daily fatigue and your mind not being clear and staying on task. It is also hard to get excited over anything.

4/18/17 by Curt Hodapp 1150

Shortness of breath, fatigue and pain.

4/19/17 by Terika 1000

Daily unbearable pain and fatigue is by far the worst. Also depending on your stage and lung involvement would be shortness of breathe.

4/19/17 by Poliseno 1000

Pain, fatigue

5/2/17 by Sheila 350

not being able to breath

5/9/17 by Michael 1150

Chronic cough breathlessness night sweats and weight loss

5/31/17 by Salosh 3601

Neurosarcoidosis symptoms, rashes and skin sarcoidosis , lung involvement with losing capacity of lungs

5/31/17 by Mihaela 800

Cough. Painful joints

9/7/17 by Jennie 400

Shortness of breath and pain

9/7/17 by Kristie 2000

Pain. The pain in my nerves are horrible.

9/10/17 by Maggie 1100

Difficulty breathing due to compromised lungs

9/11/17 by Shari 300

Night sweats , sleeping for hours, excessive rapid weight loss, listlessness,

9/11/17 by XTIENNA 2000

Breathing difficulty is often common in sarcoidosis making every day life more difficult. Many people also have joint pain, severe tiredness and a general feeling of being constantly unwell. If you could get rid of any symptoms it would be the pain that comes with some of the symptoms. Secondly the tiredness.

10/26/17 by Diane 2735

Loss of quality of life Dependence on medication to relive some of the symptom's Chronic pain /fatigue brain fog due to side effects of medications Reliance on others to do some of the work you used to be able to do your self Would love more energy to be able to do more than I am able to do now Pain in lungs due to sarcoid scars to be completely gone

10/27/17 by Stewart 2000

Lack of energy, joint pain, breathlessness, brain fog, sweating

10/27/17 by KindredSpirit 2050

Fatigue Pain Neurological symptoms and after effects

10/27/17 by Wendy 2000

Irritating cough Painful skin lesions Sore/painful joints Fatigue

10/27/17 by Sandra 1200

Fatigue and breathlessness

10/28/17 by Penny 1200

Tiredness, uncontrollable discomfort, what the disease leaves you with years along the line...

10/28/17 by Edana 400

Short of breath Weight loss Loss of appetite Fever The most limiting condition, according to my experience, is being short of breath. Being short of breath limits you from doing the regular activities e.g. household chores, holding a lengthy conversation, running for a bus etc. Fatigue comes in at a later stage followed by aches and pains. Sometimes getting out of bed is a problem because the body feels as if it was run over by a trailer truck.

10/28/17 by Jessica 600

Difficulty breathing .. especially in damp weather Fatigue .. even when I've just got out of bed. Conversely I am sometimes so lethargic I can hardly move but can't sleep when I lie down SWEATS .. they come from nowhere, are not accompanied by any flushes or temperature and literally drip down my face and off my chin. My hair becomes saturated and sweat literally drips off the ends. I can no longer wear man-made fabrics because they aren't absorbent. Repeated chest infections requiring steroids Sinusitis .. recurrent bouts

12/19/17 by Lynden1961 150

The pain in whole body... the pain

1/11/18 by Cathleen 1900

When you have Sarcoidosis in your lungs, it affects everything you do. If you get too hot, too cold, breath dirt, dust or smoke you may have a hard time breathing. Also, skin lesions. They get real red, sore, scaly and itch not to mention unsightly.

3/30/18 by Rende 200

Shortness of breath has been the worst symptom for me, personally. I have scar tissue in my lungs and if I could get rid of that, I would do it in a heartbeat.

4/2/18 by Lisa 1100

Fatigue, it is the one thing I'd like to change. Some days are worse than others. A cough - only when my flare is bad. Aching- during a flare

7/4/18 by msinky 2550

Sarcoidosis is an inflammatory illness of the immune system. Our bodies send lymphocytes to parts of our bodies the immune system ‘thinks’ they’re needed, but are in actuality, not. These lymphocytes gather in the spot they’ve been sent to, and eventually clump up together and form granulomas. Granulomas, if left in place and untreated, become fibroids, a physical manifestation of excess lymphocytes that is far more difficult to remove than granulomas. Granulomas are often referred to as ‘snow balls’, due to their appearance under a microscope.

10/15/18 by Rika 1930

Fibromyalgia Fatigue Pain Shortness of breath Migraines Joint stiffness Hot hands & burning feet Fog brain Uveitis - itchy and blurry eyes Eczema

10/15/18 by Zaida 1050

Sarc is a cluster of granomas causes inflammation. It is usually in the lungs but can also be in the lymph nodes and spread from there. I found out that I had it when to Cleveland clinic.. I had it in my eye which caused warped vision. I started with a rash on my left shin..they gave me steroids in eye drops and I had shots in the eye. They the steroids were more of irritant then it helped so I stopped using it. Sarc usually goes away on its own but there some that have it hang on because of a weakened immune system.

11/13/18 by Sue 200

Some of the basic Symptoms are breathlessness, fatigue, chest pain, not being able walk long distances, losing hair, itchiness for no reason, coughing and clearing your throat...

11/13/18 by Wen 2100

Shortness of breath/lung restriction, vision problems, skin problems, fatigue. I would love to have my full lung capacity back.

10/8/19 by Lynn 900

Shortness of breath. The coughing fatigue

10/8/19 by Lashawn 2500

The joint pain and the way sarcoidosis effects your organs would be first on my list. Secondly would be the fatigue.

10/8/19 by Jennifer 100

Sarcoidosis can effects your entire body. I have it in my lungs my heart my bones and they believe it was in my kidney. My chest cavity is full of sarcoidosis. I just wish I can breathe better and I had more energy. I am also in a lot of pain. But not everybody feels the same way that why it's called it the snowflake illness because no one is the same and it does not effect the same organs in everyone's body.

3/8/20 by Elizabeth 4800

Persistent dry cough. Shortness of breath. Wheezing. Chest pain. Extreme tiredness. Fever. Inflammation of the eyes and pain, burning, blurred vision, and light sensitivity. Night sweats. Pain in the joints and bones. Skin rashes, lumps, and color changes on face, arms, or shins. Swollen lymph nodes. Weight loss.

1/18/21 by Althea 4550

Breath issues Chest Pain Joint pain Anxiety Fatigue

2/13/21 by Hélène 1100

Fatigue, joint pain, nodules in lungs, eyes, skin, muscle pain, asthma.

9/14/23 by Emma Johnson 2500

Translated from french Improve translation

First the muscle pain. Fatigue, more strength

9/7/17 by Tiberi Antonio. Translated

Translated from french Improve translation

the nodules fever painful joints loss of weight fatigue problems visual and the coughing dried ....................

9/8/17 by Lamya. Translated

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First the fever, then Fatigue, insomnia, depression, and sometimes difficulty respiratoir and dizziness.

9/8/17 by Ramzi. Translated