Which are the symptoms of Scleroderma?

Reflux that is not heartburn but on a scale that is so painful. This is due to the disease destroying the motility of your esophagus. My reflux was so severe and damaging that I had experimental gastric bypass surgery to stop it. I was not overweight at all and this was a method suggested by doctors out of the United States. By having my stomach be the size of a plum gastric juices can't reflux. Pulmonary Fibrosis where your lungs are affected. The medication Cellcept has been so effective for me. I have horrific pain 24/7 and horrible fatigue. My pain is everywhere but the worst being in the legs. It's as though I am being stabbed every single centimeter from the inside - out. So I am not able to sleep much at night due to the pain. I could go on and on with other issues.....

3/21/17 by Peggy L 550

Joint pain and stiffness would be the first thing I would get rid of. For others with greater skin involvement, skin thightening would be the first.

3/22/17 by Paige 100

Scleroderma is a very personal disease, meaning each person has very different issue than the next. So there really isn't one main symptom that is the worst in general. For myself the worst symptoms would have to be my skin and how tight it has become. It causes me to get horrible ulcerated sores on my hand and feet. And my lung function which has been steadily getting worse. I have pulmonary fibrosis and it's becoming harder and harder for me to breath on my own.

3/31/17 by Amy 2600

The worst symptoms of Scleroderma would be tightening of the skin and getting rhaynud

4/1/17 by Fashah 1150

Stifness of the body pain in your hands tired all the time

4/1/17 by Milda 1000

It varies depending on the disease variant. For patients with more severe diffuse forms of scleroderma, it can be severe pain and fatigue, physical deformity (typically hands then face). Digital ulcers can be very painful and slow healing, potentially leading to gangrene and auto-amputations. Lung problems are common in this disease and are currently the leading cause of death. While the disease gets its name from hardening of the skin, in the limited variants of the disease, this symptom is often delayed for many years. In the diffuse variants, skin changes are usually very common in early years.

4/3/17 by Choclit 1150

For me the worst symptoms are the extreme fatigue, insomnia, AND rheumatoid arthritis. Also, the mental challenges of NOT working!

9/29/17 by Teresa 100

I have CREST ! Raynauds stomach issues and joint pain!

6/16/18 by Michelle Weatherford 100

Scleroderma means 'tight skin" in Latin and has many variable symptoms. I am affected by Scleroderma with features of CREST: Calcinosis, Reflux, Esophagial issues, Sclerodactly, and Tangectacius. These symptoms seem to move around and some do not affect me at all. However, wintertime is particularly difficult with Raynaud's which turns my fingers red, white, and more often, blue. This means poor circulation and blood is not going to those areas.

11/21/18 by Juanita 1900

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Without hesitation raynaud's syndrome result in ulcers and wounds inability to use the hands.

2/24/17 by . Translated

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hypertension and pulmonary fibrosis, barett barret, renal failure chronic, deformity of hands and feet due to the hardening of the latter, arthralgia, diffuse, association with Sd. Sjogren's and Raynaud's

2/27/17 by cecilia miranda. Translated

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Pain, especially in the legs, hands, beds become swollen and with sores, lack of circulation in the fingers, tiredness, breathing problems with exercise.

3/21/17 by Amparo. Translated

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Widespread pain, heartburn, dizziness, nausea, blurred vision, limitations in the arms and legs, difficulty walking for a long time, I can not wear any footwear and especially deterioration of the denture

3/23/17 by ana h. Translated

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Hardening of the skin. Lack of mobility of certain body parts, especially hands. Change in skin coloration (darkened or in some cases white spots). Severe loss of weight. Difficulty eating certain foods, especially hard. Reflux and nausea. Diarrhea and extreñimiento.

4/28/17 by Alma Olivia. Translated

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Spots on the skin, which is placed as hard as a piece of cardboard, first the stain is white until you get to an ivory color.they have little tolerance to the cold

5/11/17 by Tatiana. Translated

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Fatigue, deficiencies in iron, known as anemia, syndrome of Reynaud, pain of joints, sausage fingers, numbness in the hands and severe pain by the failure in the flow of blood to the hands and fingers, similar to a burning pain

5/15/17 by Lucero. Translated

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Is usually associated to the Raynaud's phenomenon that hampers the movement of hands and feet usually when you are exposed to cold or stress. It can also affect internal organs, primarily the esophagus and therefore will have difficulty swallowing and reflux, lungs and can cause pulmonary fibrosis or pulmonary hypertension, this may also affect heart and kidneys. The liver can be affected but often times it is due to the medication. The skin loses flexibility and usually although it depends on the type of scleroderma tends to affect the face and hands to a greater extent. Problems in the mobility of the joints, ulcers in the fingers of the hands, ankles, and elbows mainly. The symptom that I would remove if I could it would be the internal organs as lungs and esophagus in my case.

5/15/17 by Montse. Translated

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Pain in every joint in the body. Digital ulcers. Difficulties in swallowing. Thickening of the skin, including opening of the mouth. Pulmonary fibrosis

9/30/17 by Carol. Translated