In 1996 I was diagnosed with Systemic Diffuse Scleroderma. I had never heard of it, couldn't spell or pronounce it. Fast forward 20 years and I can say that Scleroderma has been a blessing in my life, not a curse.
In 1996 I almost immediately was ho...
I was officaily diagnosed in 2013 at age 52.
My dermatoligist ran blood tests becaause I was complaining of the apperance of several red spots (telangiectasias) and Raynauds symptoms.
She came back with the news that I have CREST syndrome, a c...
It took me several years before I got diagnosed. I even had one doctor tell me that it was all in my head. For years I always had an excuse for why feeling the way that I was, stress or taking on to much. Then finally I saw the correct doctor a...
98 people with Scleroderma have taken the SF36 survey. Mean of Scleroderma is 1519 points (42 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey