Scleroderma

Can people with Scleroderma work? What kind of work can they perform?

See how people with experience in Scleroderma give their opinion about whether people with Scleroderma can work and what kind of jobs are more appropriated for people with Scleroderma

Can people with Scleroderma work?

Scleroderma is a chronic autoimmune disease that affects the connective tissues in the body. It is characterized by the hardening and tightening of the skin and can also affect internal organs. The severity and progression of scleroderma can vary greatly from person to person, so the ability to work will depend on the individual's specific condition and symptoms.

While scleroderma can present challenges in the workplace, many individuals with the condition are able to continue working. However, it is important to note that some individuals may experience limitations or need to make adjustments to their work environment to accommodate their symptoms.

What kind of work can they perform?

The type of work that individuals with scleroderma can perform will depend on various factors such as the severity of their symptoms, the specific limitations they may have, and their overall health condition. It is crucial for individuals with scleroderma to work closely with their healthcare team to determine what type of work is suitable for them.

Here are some considerations for individuals with scleroderma when it comes to work:

Flexibility: Jobs that offer flexibility in terms of hours, breaks, and work arrangements can be beneficial for individuals with scleroderma. This allows them to manage their symptoms, attend medical appointments, and take necessary rest breaks.

Physical demands: Depending on the extent of their symptoms, individuals with scleroderma may need to avoid physically demanding jobs that require heavy lifting, prolonged standing, or repetitive motions. Jobs that involve more sedentary tasks or allow for frequent breaks may be more suitable.

Environmental factors: Scleroderma can make individuals more sensitive to temperature changes, especially cold temperatures. Therefore, jobs that expose them to extreme cold or require prolonged exposure to air conditioning may need to be avoided or modified.

Stress levels: Stress can exacerbate symptoms in individuals with scleroderma. Jobs with high levels of stress or intense deadlines may need to be managed carefully or avoided altogether. Creating a supportive work environment and implementing stress management techniques can be beneficial.

Accommodations: Depending on the specific limitations and symptoms experienced by individuals with scleroderma, workplace accommodations may be necessary. This can include modifications to the physical workspace, adjustments to work schedules, or the provision of assistive devices to aid in performing job tasks.

It is important for individuals with scleroderma to communicate openly with their employers about their condition and any necessary accommodations. Many employers are willing to work with employees to create a supportive and inclusive work environment.

In conclusion, individuals with scleroderma can often continue working, but the type of work they can perform will depend on their specific condition, symptoms, and limitations. It is crucial for individuals with scleroderma to work closely with their healthcare team and employers to determine the most suitable work arrangements and any necessary accommodations. With proper support and understanding, individuals with scleroderma can lead fulfilling and productive work lives.

by Diseasemaps

I certainly couldn't. With all of my medical issues, pain, and extreme fatigue there is no way that I would be able to be reliable. Also, due to my medications I no longer drive out of safety.

3/21/17 by Peggy L 550

YES THEY CAN !

4/1/17 by Fashah 1150

Depends. I am still running my own business. Try not to do work that is physical.

4/1/17 by Milda 1000

Yes initially, but severe fatigue can become a major problem quickly in some disease variants. Also, hand deformities can greatly restrict work options in many patients. There is wide variability with this disease, in part because of subtype. Patient's with limited variants of scleroderma can usually work for longer periods of time post diagnosis than patients with diffuse variants. Eventually, most patients with scleroderma end up on disability.

4/3/17 by Choclit 1150

Yes! People with Scleroderma can do whatever they choose to set their mind too. I worked with Scleroderma for about 6 years before going on disability. If your able ad willing you can do anything!

3/30/18 by Amy 2600

Absolutely yes! People can work; however, it is important that any repetitive work might cause damage or be difficult for those with arthritis, Raynaud's, or rheumatism in their hands. Computer work is easy for some and some might even work outdoors in milder climates. Cold and wet weather might be difficult for those with Raynaud's. Some who have COPD or breathing issues might have difficulty with rigorous activity/work. I've had this label since 2000 and yet, I was able to teach, move about, and use a computer. However, many have Scleroderma features that prevent them from moving without pain or difficulty. Now that I'm retired, I'm able to move but have pain in my knees, shoulder, and have difficulty getting out of bed in episodes. Fortunately, not often. I am fortunate to still be somewhat active in my 70's. I do not know the percentage of those as active as I am but I believe, I am fortunate to not be severely impacted (so far. by Scleroderma.

11/21/18 by Juanita 1900

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Can work in a jobs very limited administrative reception jobs that do not involve stress if we do not go wrong.

2/24/17 by . Translated

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yes, but the extreme fatigue and some distortion and necessitate a slower pace, to adapt schedules or workday...in case of major disability must retire

2/27/17 by cecilia miranda. Translated

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Of course that can work, will depend on the degree of impairment and the work

3/21/17 by Amparo. Translated

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If we can work but not in heavy work. We cannot expose ourselves to the sun, cold or stress. I believe that 80% works

3/23/17 by ana h. Translated

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Yes they can, but it is difficult to keep pace with other peers. It is also difficult to find a new job, as companies opt for healthy and active people. In this case, my sister, who is affected, is currently going through a lot in his job. She works in a restaurant, but day-to-day has to face an unbearable situation. Work stress and not eating on their horar during the job, practically you are killing. Wanted to get out of the job, but I sincerely believe that we have not hired in the other hand, since their hands each time they move less. It is a very complex situation, and sad because he only has 37 years old, is a single mother.

4/28/17 by Alma Olivia. Translated

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If you can work out what they want and feel good and comfortable

5/11/17 by Tatiana. Translated

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If we are able to work, even when the disease is very limiting for the damage they cause, mainly when it is systemic, we must not give up and try to occupy our mind on something productive that will help us to feel useful, we can do anything we set our mind giving us our tricks

5/15/17 by Lucero. Translated

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Normally you can limit some jobs that require the use of hands if you have ulcers or stiffness that prevent take things or to be very physical because we got tired quickly. Tb that do not use chemicals or are exposed to cold or water.

5/15/17 by Montse. Translated

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Depends on the condition of the disease. Usually, people with scleroderma can't work and/or work and with the advance of the disease end up stopping.

9/30/17 by Carol. Translated

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