My son's journey

My son was diagnosed in 2005 with a Simpson Golabi Bhemel Syndrome. It is a very rare overgrown that only affects 300 people world wide. Little is know about this and we struggle every day. I would love to know more about this this way I can share with others. 

 

World map of Simpson-Golabi-Behmel syndrome

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Find people with Simpson-Golabi-Behmel syndrome through the map. Connect with them and share experiences. Join the Simpson-Golabi-Behmel syndrome community.