Hey Kim, I was googling something about sticklers and see your story. That's sad about your brother sounds like you've both had a pretty hard time of it. I thought I'd comment since no one else has. I'm 32 I had my first bilateral retinal detachment when i was 8 and then again when i was 10 luckily my vision corrects quite well so i live a normal life. I started getting sore joints (mainly wrists and thumbs) recently I've never much pain with them before so reading this makes me feel fortunate. I never go any tests done to confirm my diagnosis they just said that's what i had when I was kid. I have sister, she had preventive surgery on her eyes for retinal detachment and has only recently developed sore wrists so we both on the scheme of things are okay. She has 2 kids and neither of them have it.