Thanatophoric Dysplasia

World map of Thanatophoric Dysplasia

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What is the life expectancy of someone with Thanatophoric Dysplasia?

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Thanatophoric Dysplasia stories

AMANDA'S LIFE

My husband and I were married in Nov. 2001 and knew that we wanted a family right away. We just knew we would have a girl and had named her Amanda Grace before we were even married. After 5 months we learned we were expecting! We were so excited! A...

Views: 466 Apr 2, 2016, 12:19 PM by Debbie

JUSTINJESSICA'S STORY

In 2013 I lost my baby girl ... It still hurts everyday

Views: 429 Jun 10, 2016, 9:06 AM by JustinJessica

A LOVE STORY AND A LITTLE BOY

Views: 78 Mar 15, 2021, 5:12 PM by MiracleMom

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