Taykira

So my daughter, Tay, was born at 35.5 gestation. She was underweight, couldn't feed properly, It was at her 3 month checkup they notoced a heart murmur and i had complained of inguinal hernias. We monitor her heart rate and at her 6 month heart checkup the Cardiologist asked me of her fathers nationality. He then stated his reason for that question was due to her eye shape, nose, heart murmur and hernia. We always based her eyes on family shape. He then told me the nane WS and it brought my thoughts back to when she was 4 months old and I was cuddling her to sleep and I was gazing at her and I knew there was something more special something more unique about her but believed the drs would have picked it up by now.

So a little before her first birthday (June 2016) another I spoke with her pediatrician and my concerns and got DNA resting done that day. September 2016 Recieved a phone call confirming diagnosis.

I was shattered. And so worried. I cried so much as I felt I failed her in some way.