Alpha 1-antitrypsin deficiency
Mother to jack and Mia
Mia - aged 4 Jack aged 1 - Jack was affected badly from birth and has liver disease already. Mia was subsquently diagnosed but no symptoms so far. Concerned as there seems very little research into the alpha 1 condition
Jack also has cystic fibrosis which has effected him greatly and combined they are not the easiest to manage
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