Newly Diagnosed about a year ago
After going to several doctors and noticing my wbc count was through the roof which they just told me was due to an infection and when i got over the infection my wbc count was still very high due to inflammation they never took me seriously about something being wrong until my doctor and neurologist both referred me to a rhemy which she caught it right on finally everything started making sense. I was 37 when diagnosed i was 18 when i had 2 severe traumas to my back first the saddle shifted on the horse i was riding so i went with the fall i hit tail bone and my neck both then 3 months later i landed flat on my back at shonneys restaurant where i was working no caution wet floor sign carring silverware it went one way i went the other on my back i hit so hard that the mat that my back hit left my white shirt so stained i bleached it 8 times it would not come out. I held up my headbut i landed on all of my back. I do believe these events started what was genetic in my blood work as i was hlnb positive (something close to that) i was started on celebrex almost instantly since i couldn't take ibu800mg due to reoccurring migraines. I have labs drawn everytime i go in.i am on Cymbalta now i was on methotrexate but i started really lossing my hair so we quit it i still take folic acid it did help some but not enoughas my hair is my one good thing that i love. I was started on enbrel which helped quite a bit.i take tramadol as needed for painful flares. I suffer from ptsd as well and some days are better than others but at first i thought it was a death sentence given to me because as i did research and found as everything fusesthere isn't as much hope as there is early on.i am overweight and most doctors seemed to be more concerned about that vs making me feel good enough to where i could exercise which gets pretty depressing at times but i have been through alot and surrvived. I have a child with hearing loss he is 4 and i have a 14 month old baby girl they are my world. I am the only one able to drive right now but there are times i go grocery shopping and i just want to die because it takes so much out of me. Hot bathes seem to help and if hot standing under the ac vents works wonders.
Just trying to take it a day at a time.
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