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I always had pain because I was born with spina bifida occulta in my neck and low back. Well I started having pain going down my leg which was new so I went to this doctor that everyone recommended and he said I needed an lamenectomy. Well I had the procedure done and I still had the pain going down my legs and numbness and tingling and I couldn’t walk unless it was with a cane. So I went back for a check up and asked him if it is possible to have Arachnoiditis which most of the symptoms were the same as mine, so he says I don’t know I think so but I’ve been wrong before. My mom lives in Missouri and she found a doctor who specializes in spinal diseases so I flew (lived in Maryland at the time) and visited this doctor which confirmed Arachnoiditis and fibromyalgia myalgia on top of my spinal bifida and we discovered that the doctor who did my surgery nicked my spinal cord covering and it was leaking for a couple of years and it harden on my nerves. Now I have adhesive Arachnoiditis, had the spinal bifida fixed in both places, have spinal stenosis on the right side (my Arachnoiditis is on the left) and now I am developing the same symptoms on the right side and all the doctors are now saying I’m not a surgical candidate anymore.

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