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Arnold Chiari stories


MY LIFE WITH CHIARI MALFORMATION


Hello! I have Arnold Chiari type 1 and Hydrocephalus(but the new dr. says I only need to have just the internal shunt as of right now),as well as POTS,Kyphosis,vertical nystagmas and a Vit. E and Vit. D deficiency. I was diagnosed in 2009 at age 34 w...

Views: 1220 by April

BE YOUR OWN ADVOCATE!


My name is Jennifer. I'm 39 years old and am finally in love and feel like I found someone I want to spend my life with. The only problem is I have Chiari. I also recently found I most likely have EDS, POTS, MCAS, and IC. These are a lot of abbreviat...

Views: 998 by Jennifer

I AM DOING OKAY MANY DAYS


Suffered with extreme stabbing pains, from laughing, couching and straining - pains that almost knocked me down.  Lips became numb, throat also became numb and my vision in my right eye was failing.  Body aches and pains and shortage o...

Views: 767 Feb 16, 2016, 5:47 PM by Doug

MY CHIARI FIGHT


Diagnosed in August 2011 surgery October 20th 2011 graguwted highschool June 2015 started college August 2015   LIFE CAN BE NORMAL AFTER SURGERY!!!

Views: 732 by Ashley Hoyt

MY STORY


I started getting extreme headaches when I was in the 9th grade. Of course back then they didn't have the technology like they have now, so on medications was my only support from the doctors.  As I got older those headaches got more worse and t...

Views: 710 by Sandy

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