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My story is probably like so many others. One day in September 2015 I became very dizzy I was driving at the time so I managed to pull over and wait for it to subside. Then came the tinnitus, and constant dizzy spells. It seems like every month it is something new. the fatigue and being off balance never goes away. I have headaches and neck pain most days. I have been off work since November 2015. Mri shows Chiari Malformation 1. Doctors dont know alot about here but at least they are moving me in the right direction. I am giving you a very short version because I can not be on the computer for long. My symptoms will increase and my mental cognition decreases as the day wears on. I know of no one in my area who has this disease and some days I feel alone, even though I have good support.
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