World map of Bartter's Syndrome


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Bartter's Syndrome stories


MY PRECIOUS PRINCESS


My daughter was born full term with no issues during the pregnancy. She had good apgar score and seemed just fine. She took formular well and grew some but was always small for her age. We constantly asked about this issue but we're always told to be...

Views: 927 Jul 26, 2017, 7:31 PM by Soysocco

CONCEPTION TO BIRTH


My first brother was born early and the doctors didn't know what to do for him. He passed away after several days I the NICU.  Because of him, I live.  Genetic testing prepared the physicians for what to expect when my mom started once agai...

Views: 453 May 18, 2017, 4:13 AM by Conner2016

HARRY'S JOURNEY


My son Harry was born eleven weeks prematurely in 2013.  Polyhydramnios became apparent at 21 weeks of pregnancy, and at 22 weeks I was admitted to hospital, having contractions.  I spent most of the next seven weeks in hospital, having a t...

Views: 436 May 17, 2017, 3:24 PM by Ellie

NEW TO BARTTER SYNDROME


I had excessive amniotic fluid in my pregnnacy. At 28 weeks I measured 52 weeks pregnant. I was admitted to the hospital at 27 weeks and my water broke at 28 weeks. Our little girl was born weighing 2.8 pounds.  Throughout her 90 day stay in th...

Views: 371 May 22, 2017, 9:39 AM by Kayleigh

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Bartter's Syndrome forum


ECHANGE SUR LE SYNDROME DE BARRTER


Je recherche des parents dont l'enfant est atteint du syndrome de bartter, tout comme moi, pour échanger sur cette maladie.

Views: 632 Nov 18, 2017, 9:12 AM by Nini

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