> Birt-Hogg-Dubé syndrome > Stories

Family

I just found out that I have Bhds. As a family we found out that my brother had it and another rare genetic mutation when he found out that he had stage 4 kidney cancer. It took a while but I was finally able to be tested for both. I came back positive for Birt Hogg Dube Syndrome. I have had some testing and have a plan to keep an eye on everything. 

World map of Birt-Hogg-Dubé syndrome


Find people with Birt-Hogg-Dubé syndrome through the map. Connect with them and share experiences. Join the Birt-Hogg-Dubé syndrome community.