World map of Bronchiectasis


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Bronchiectasis stories


BESC2 (OMIM613021)


I have CFclass 5 ( F508d, 5T / 9T ) and an ENaC- mutation (W493r SCNN1A) I am waiting for lungtransplant, trubles with pancreas end colon    

Views: 817 Feb 23, 2016, 5:01 PM by Joop

LIFE WITH COPD


Hi all Im Susan i was diagnosed with COPD when i was 38yrs old,i had the breathing capacity of a 76yr old,I had never heard of COPD before,i had only heard of emphysema but associated it with older men who worked down the mining pits,never thought wo...

Views: 761 Feb 25, 2016, 1:08 PM by Susan

CINNA'S STORY


after fighting for answers for 5 years, my 5 year old daughter was finally diagnosed. Her lungs are quite scarred and she has some lung tissue around her heart which has necrofied. 

Views: 711 Nov 24, 2015, 3:08 PM by Cinna

BRONCHIECTASIS AND COPD


I was recently diagnosed with Bronchiectasis and COPD after years of working in industry. I am learning to start a new life with this illness, and possible heart problems caused by the stress on my heart.  

Views: 692 Dec 12, 2015, 10:08 AM by Ken

MY BRONCH STORY


I was 12 and had had a near miss with death when I was diagnosed both my great grandparents had bronchiectasis my great grandad in exactly the same area as me lower left lobe and spreading I now have pseudomonas as well and have been severely asthmat...

Views: 687 Nov 24, 2015, 12:32 PM by Amanda

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Bronchiectasis forum


QUINSAIR INHALED THERAPY


I recently read that this is a new drug that has just been made available to CF patients with Pseudomonas and would like to know if it's also available to Bronchiectasis patients in Canada.

Views: 397 Apr 22, 2016, 1:02 PM by Linda W

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