Brugada
My Brugdada story starts with what was a normal evening at home, near downtown Columbus, Ohio, on February 25, 2009. It was a day off work and had spent the day playing with my then 4-year-old daughter, while my stepson was at school and their mom at work. It was a fairly uneventful Wednesday night and after dinner was probably just on the computer or watching tv. My ex wife tells me I was on the computer when I suddenly got up and just told her to call 911. I woke up next a week later on March 4. I fully understood what was around me, that I was in the hospital, but was not exactly sure how or why I was there. I seemingly had no memory of anything in the last month or so. Well over the course of the next days I learned bit by bit what happened to me. The evening of 02/25/09 I had a sudden cardiac arrest. I was completely out. Paramedics from CFD Station 2 were at the house within minutes, as it was a very short distance away. I was in Ventricular Fibrilation and shocked back to sinus. I was at Grant Medical Center within 5 minutes, again, a benefit of living near the center of a large city. I was diagnosed with Brugada via EKG while I was in the hospital. I had my first AICD implanted on March 11, and went home a couple days later. I slowly learned to live with the device, what happened, and thanks to my ex wife, quick response by EMS, amazing care from the ER, ICU, and cardiac units at the hospital, I am 100% recovered. I have had my previous ICD shock me 10 times since then. The battery finally got low enough to warrant replacement in February of this year, almost 8 years to the day of my initial dx, and now have an SICD implanted. A year or so after my SCA I met someone else and that led to a baby boy a year or so after that. In 2015 I decided to see if we could do some sort of genetic testing for my two biological children. Early last year it was determined that they both test positive for the same mutation of the SCN5A gene that I do. My son, who is now 6 has a loop recorder implanted and my now 12-year -old daughter will be having an implant after the school year ends. Feel free to ask any questions.
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