"Muscle Weakness"

I grew up in Crewe, UK. I have always been aware that there was something different about me.
I went to a special needs school in a nearby town called Winsford where I got the care I needed but I was not able to walk until I was 5.
Once my Mum realised I could walk for myself but that I was behind my peers in terms of learning she moved me to a new school. Here I learned what I should be learning at that age but I also learned something altogether more harrowing. That was how different I was to people my own age in terms of walking, running etc. It is worth mentioning that I have never caught up with these folks but luckily due to my dry sense of humour I was always able to find friends
As I have got older it has always been important for my own piece of mind to be as "normal" as possible but I am finding that the older I get the weaker I seem to get and as a result the more I need to rest. Does anyone else experience this? If so do you combat it or is this a unfortunate inevitability of being born with CCD?