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  2. Central Core Disease
  3. Advice
I have a neuromuscular disorder
by Carol
My Son is much more affected than me
by Elena
Stay active
by Melissa
I love music varied..
by Deborah
Eating a good well balanced diet
by Paul
Started regularly exercising and weight training
by Dtl379
Gabapentin helps with the nerve pain
by Karen
faire des étirements et de la gym douce
by Viel
Acompanhamento médico tem me ajudado nos últimos 18 meses.
by ̶A̶n̶d̶r̶e̶z̶i̶n̶h̶o̶
Mon entourage est safe et inclusif
by Ema
riding my recumbent tricycle helps my strength
by Carol
I can still do things
by Elena
Eat healthy to control weight gain
by Melissa
Also like a soft breeze on a warm not hot day ...
by Deborah
regular exercise but not too strenuous
by Paul
I have very supporting family
by Dtl379
My partners support
by Karen
évoquer les difficultés au travail (reconnaissance de travailleur handicapé)
by Viel
Obtive meu diagnóstico conclusivo aos 30 anos.
by ̶A̶n̶d̶r̶e̶z̶i̶n̶h̶o̶
Le feminisme et la politique queer m'ont beaucoup apporté
by Ema
My Faith is my stronghold
by Elena
Rest as necessary
by Melissa
Nice food ..and a friendly companion
by Deborah
trying to keep my weight down
by Paul
I have lost weight which has helped the muscle control and balance
by Dtl379
adapter son environnement pour éviter les fatigues (limiter les escaliers, faire moins de corvées)
by Viel
Hoje tenho uma compreensão melhor do meu diagnóstico e com isso, vivo melhor.
by ̶A̶n̶d̶r̶e̶z̶i̶n̶h̶o̶
Les milieux en marge de notre société tel que des associations d'artistes m'apporte aussi beaucoup
by Ema