NICHOLAS
My son was born in 1998. He has CHARGE - diagnosed within 24 hours and a whole list of additional issues they initially thought was Chromozone 6 Ring Syndrome.. After almost 100 surgical interventions - including 2 HEART, 2 eye, etc.. He is living in an independant full sstaffed living facility - his own apartment with 2 other Deaf- Blind individuals. YES he is Deaf- Blind - add it to the list. We are so thankful to CDBA ONTRIO and all their support
Find people with CHARGE Syndrome through the map. Connect with them and share experiences. Join the CHARGE Syndrome community.