Chronic Fatigue Syndrome / M.E.

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Me, myself and my M,E (Myalgic Encephalopathy)

I was your typical average teenage girl always out running around. always out scaring my parents because yet again i was doing something crazy like climbing a really high tree, or riding my bike to close to the duck pond, or going fishing and forgeting to watch out for the hook and smining it around. i was always the one who you would see having fun, laughing, running, playing everything a child should do. i was also the kid who was really clever got top marks in all my studies! the child that my parents where proud of.

This was untill i started my GCSE's i was predicted amazing grades i was as happy as could be timetabling revision slots, running slots, long walks to the beach, late nights under the stars. unfortunitly then i got diagnosed with m.e (Myalgic Encephalopathy) dont worry not even i can say it yet! now i am trying to take my A-levels which my graded have dropped significantly at! im making 2 hours a week out of 25! im the kid that everyone now forgets about as im the kid who is now always in bed. im the kid that people only remeber when i post something on facebook or when they see me out and they do all that "how are you i must come and see you" rubbish that they never follow through.

But i am also the kid who no dedicated my life to spreading awareness about m.e and other chronic illnesses. im the kid that tries to make other peoples lifes easier when finding out they have m.e. im the kid who does this because i know what its like to be alone when first diagnosed.

My son was born in 1994, was straight A Stanford student, got ill with 3 viruses Jan-March 2012 and triggered ME, Myalgic Encephalomyelitis/CFS, that affects approx 20,000.000 worldwide. Hope can fund key R&D groups like OpenMedicineFoundation.org that are trying find biomarkers and better understanding of biochemistry, to be able to treat this disease. My son tried to push through his 2012 school year and got more ill & is now bedridden, cannot talk or chew food. People need to support R&D and also pace themselves to not crash with this disease. Wish Chloe the best of health and eventual cure. We need to share information worldwide, and push governments to support more R&D to Cure M.E. See www.End-MECFS.org for some R&D updates.

Posted 8 years ago by TomC, Bedridden, Severe ME since 2012, b1994, Stanford student, then ME, updated by MJC (parent). Please put out blue lights/ribbons for M.E.!

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