Sharleen's detailed history with ME/CFS 2014-2017: "After 1.5 years of going to endless doctors & specialists, a rheumatologist diagnosed me with Fibromyalgia in 2015, but I was not responding to the prescription medications. My GP had done the the immune panel of blood tests, but not EBV. My results were all negative except for off the charts reactivated Epstein Barr Virus. Since doctors are NOT taught about using anti-virals to treat viruses, by the time I had done the research AND fought for long term, high dose anti-virals (Valtrex), EBV was entrenched and so was ME/CFS. It took only 4 years from initial, extraordinary fatigue after any exertion/exercise (a common early symptom) to being completely housebound & bedridden. I am still fighting for SSDI and living off shrinking retirement funds. #SillySheets is a fundraiser I organized from bed on Vashon Island with an east coast friend (he has been fighting ME/CFS for 12 years) to benefit www.omf.ngo research. US government funding is essentially $5 per patient for a disease that looks like it is a global epidemic & is like end stage AIDS or cancer in patients."