Is it advisable to do exercise when affected by Cleidocranial Dysplasia? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Cleidocranial Dysplasia to practice sports and which ones are the most recommended if you have Cleidocranial Dysplasia


Cleidocranial Dysplasia (CCD) is a rare genetic disorder that affects the development of bones and teeth. It is characterized by the incomplete or absent development of the collarbones (clavicles) and delayed closure of the spaces between the skull bones. CCD can also lead to dental abnormalities, such as delayed eruption of permanent teeth and extra teeth.



When it comes to exercise and physical activity for individuals with CCD, it is important to consider the specific symptoms and limitations they may have. As with any medical condition, it is crucial to consult with a healthcare professional or physical therapist before starting any exercise program.



Low-impact exercises are generally recommended for individuals with CCD, as they minimize stress on the joints and bones. These exercises help improve cardiovascular fitness, muscle strength, and flexibility without putting excessive strain on the body. Some suitable activities include:




  • Swimming: Swimming is an excellent low-impact exercise that provides a full-body workout. It helps improve cardiovascular health, strengthens muscles, and enhances flexibility.

  • Cycling: Cycling is another low-impact activity that can be beneficial for individuals with CCD. It helps improve leg strength, cardiovascular fitness, and overall endurance.

  • Yoga: Yoga focuses on stretching, balance, and relaxation. It can help improve flexibility, posture, and overall well-being. Modified poses can be used to accommodate any physical limitations.

  • Pilates: Pilates is a low-impact exercise method that focuses on core strength, flexibility, and body awareness. It can help improve posture, stability, and overall muscle tone.



Intensity levels of exercise should be tailored to the individual's abilities and fitness level. It is important to start slowly and gradually increase the intensity and duration of the exercises over time. Listening to the body and avoiding overexertion is crucial to prevent injuries.



Strength training exercises can also be beneficial for individuals with CCD, as they help improve muscle strength and bone density. However, it is essential to use proper form and technique to avoid putting excessive stress on the joints and bones. Working with a qualified physical therapist or trainer can ensure safe and effective strength training.



Remember, each individual with CCD may have different abilities and limitations, so it is crucial to personalize the exercise program accordingly. Regular exercise, when done correctly and under professional guidance, can have numerous benefits for individuals with CCD, including improved physical fitness, enhanced bone health, and increased overall well-being.


by Diseasemaps

Exercise is wonderful for people with CCD, but should be tailored to each individual. I don't have collar bones, so I don't have very much upper body strength. I just don't lift a lot of weight, or I could hurt myself. Cardio and many different types of sports can be very effective exercise for people with CCD. Tennis was very fun for me, because you don't need to be very tall to do it, and you don't need massive amounts of strength either.

5/16/17 by Paige 600

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