Stories of Cleidocranial Dysplasia

STORY
Cleidocranial Dysplasia stories
I am currently working as a Craniofacial Awareness Advocate.   As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of stu...
Cleidocranial Dysplasia stories
I was diagnosed before I was born. My mother and my grandmother both have Cleidocranial Dyplasia. I have only met one other person outside of my family that had Cleidocranial dysphasia. I am 22 years old and haven't had a single needed surgery becaus...
Cleidocranial Dysplasia stories
I was born with cleidocranial dysplasia. It is a congenital disorder primarily affecting the bones and teeth. I had multiple mouth surgeries through childhood. It's been said I had the sharks equivalent of teeth. I am 30 and due to funds I am still n...
Cleidocranial Dysplasia stories
I was born and raised in Colorado. I got diagnosed with CCD at a very young age. I don't have collar bones at all, had 3 different surgeries for my baby teeth to be removed and my adult teeth to come in. I had braces for 5-6 years to aid the process....
Cleidocranial Dysplasia stories
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Statistics of Cleidocranial Dysplasia

6 people with Cleidocranial Dysplasia have taken the SF36 survey. Mean of Cleidocranial Dysplasia is 2234 points (62 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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