> Coats Disease > Stories

Noa

Hello everyone! My son (19 months) was diagnosed with Coats. We were told that he is the only active case in Croatia ?! I believe you know how rare this diagnosis is and when you are from a small country like ours, it is an even worse situation. The doctor told us that his eye was badly damaged and that there was no way out, his retina was almost completely separated, but as long as it didn't hurt, we wouldn't do anything. When we notice redness of the eye, that it hurts ... to call and then, unfortunately, the eye will be removed. But we are fighting strong!!
Read more:
https://m.facebook.com/story.php?story_fbid=4850546381624122&id=177881668890640&m_entstream_source=timeline&__tn__=%2As%2As-R

World map of Coats Disease


Find people with Coats Disease through the map. Connect with them and share experiences. Join the Coats Disease community.